ASCAT 2025 Programme

Please note: Programme is best viewed on a desktop rather than a mobile device, and timings are subject to change.

Click on the session title for more information.

Wednesday, October 1, 2025

	.	.	.	.	.
11:00 AM - 6:30 PM	Wednesday Registration & Information Desk is open for check in, material collection, and event information
11:05 AM - 11:25 AM	Wednesday Welcome Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
11:25 AM - 11:35 AM	Welcome Address Speaker: Biree Andemariam Main Plenary Hall - Rooms 8 & 11
11:40 AM - 12:40 PM	Legacy and Progress: A Conversation on the Past and Future of Sickle Cell & Thalassaemia Chair: Bijal Trivedi Speakers: Elliot Vichinsky (US) Maria Cappellini (Italy) Main Plenary Hall - Rooms 8 & 11
12:40 PM - 1:15 PM	What is the Primary Driver of Sickle Cell Disease? Moderator: Andrew Campbell Speakers: Enrico Novelli (US) - Vascular Dysfunction Francesca Vinchi (US) - Intrinsic Red Blood Cell Properties Olivier Hermine (France) - Circulating Plasma and Inflammatory Mediators David Rees (UK) - Extrinsic Influences (Environment and Psychosocial Factors) Main Plenary Hall - Rooms 8 & 11
1:15 PM - 2:00 PM	Researcher Lunch
1:15 PM - 2:00 PM	Wednesday Lunch (Networking & Exhibition) Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
2:00 PM - 3:00 PM	Advancing thalassemia management: Insights into clinical data and disease burden Sponsor: Agios Main Plenary Hall - Rooms 8 & 11
3:00 PM - 3:05 PM	Break
3:05 PM - 4:05 PM	Thalassaemia: Pathophysiology and Screening of Thalassemia Chair: Maria Cappellini Speakers: Irene Motta (Italy) - Update on Pathophysiology of Beta Thalassemia Paul Telfer (UK) - National Screening and Prevention Strategies – the Keys to the More Effective Control of Haemoglobin Disorders Frederic Piel (UK) - Thalassemia Population Screening Room 14	Basic Science: Haematopoiesis and Erythropoiesis Chair: Enrico Novelli Speakers: Annamaria Aprile (Italy) - Hematopoietic Stem Cell and Niche Defects in Thalassemia Sara El Hoss (France) - Erythropoiesis and Hematopoiesis Defects in SCD Letizia Fontana (France) - Epigenome Editing as a Novel Treatment for Sickle Cell Disease and Beta-thalassemia Room 13	Sickle Cell Disease: The Role of Neurocognitive Assessments in Sickle Cell Disease Chair: Jerlym Porter Speakers: Jennifer Longoria (US) - Neurocognitive assessments in SCD, role in supporting education and employment Mary Ampomah (Ghana) - Neurocognitive assessment-- the African Perspective David Calvet (France) - Neurocognitive assessment in adult patients with SCD Room 17
4:05 PM - 4:40 PM	Wednesday Afternoon Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
4:40 PM - 6:30 PM	ASCAT 2025 Top Abstracts Showcase Chair:Raffaella Colombatti Speakers: Dr Stella Malangahe - Preliminary results of Allogeneic Hematopoietic Stem Cell Transplantation for Sickle Cell Disease in Tanzania Prof. Biree Andemariam - Voxelotor Safety and Effectiveness in Patients With SCD in the RETRO and PROSPECT US Registries Prof. Halima Bello-Manga - Phase 3, Randomized, HOPE Kids-2 Trial of Voxelotor in Children with SCD and Conditional TCD Prof. Halima Bello-Manga - RESOLVE: a Phase 3, Randomized Trial Evaluating Voxelotor for Leg Ulcer Healing in SCD Prof. Khaled Musallam - Survival and Morbidity Among Adults With Thalassemia in England: Retrospective Analysis Using Routine Healthcare Data Prof. Josu de la Fuente - Durable Clinical Benefits With Exagamglogene Autotemcel for Transfusion-dependent Thalassemia and Severe Sickle Cell Disease Dr Kofi Anie - Patient Advocacy Group Involvement in the Development of the MANAGE, MONITOR, REALIZE (MMR) Framework Main Plenary Hall - Rooms 8 & 11

	.	.
11:00 AM - 6:30 PM	Wednesday Registration & Information Desk is open for check in, material collection, and event information
11:05 AM - 11:25 AM	Wednesday Welcome Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
11:25 AM - 11:35 AM	Welcome Address Speaker: Biree Andemariam Main Plenary Hall - Rooms 8 & 11
11:40 AM - 12:40 PM	Legacy and Progress: A Conversation on the Past and Future of Sickle Cell & Thalassaemia Chair: Bijal Trivedi Speakers: Elliot Vichinsky (US) Maria Cappellini (Italy) Main Plenary Hall - Rooms 8 & 11
12:40 PM - 1:15 PM	What is the Primary Driver of Sickle Cell Disease? Moderator: Andrew Campbell Speakers: Enrico Novelli (US) - Vascular Dysfunction Francesca Vinchi (US) - Intrinsic Red Blood Cell Properties Olivier Hermine (France) - Circulating Plasma and Inflammatory Mediators David Rees (UK) - Extrinsic Influences (Environment and Psychosocial Factors) Main Plenary Hall - Rooms 8 & 11
1:15 PM - 2:00 PM	Researcher Lunch
1:15 PM - 2:00 PM	Wednesday Lunch (Networking & Exhibition) Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
2:00 PM - 3:00 PM	Advancing thalassemia management: Insights into clinical data and disease burden Sponsor: Agios Main Plenary Hall - Rooms 8 & 11
3:00 PM - 3:05 PM	Break
3:05 PM - 4:05 PM	Thalassaemia: Pathophysiology and Screening of Thalassemia Chair: Maria Cappellini Speakers: Irene Motta (Italy) - Update on Pathophysiology of Beta Thalassemia Paul Telfer (UK) - National Screening and Prevention Strategies – the Keys to the More Effective Control of Haemoglobin Disorders Frederic Piel (UK) - Thalassemia Population Screening Room 14	Basic Science: Haematopoiesis and Erythropoiesis Chair: Enrico Novelli Speakers: Annamaria Aprile (Italy) - Hematopoietic Stem Cell and Niche Defects in Thalassemia Sara El Hoss (France) - Erythropoiesis and Hematopoiesis Defects in SCD Letizia Fontana (France) - Epigenome Editing as a Novel Treatment for Sickle Cell Disease and Beta-thalassemia Room 13
4:05 PM - 4:40 PM	Wednesday Afternoon Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
4:40 PM - 6:30 PM	ASCAT 2025 Top Abstracts Showcase Chair:Raffaella Colombatti Speakers: Dr Stella Malangahe - Preliminary results of Allogeneic Hematopoietic Stem Cell Transplantation for Sickle Cell Disease in Tanzania Prof. Biree Andemariam - Voxelotor Safety and Effectiveness in Patients With SCD in the RETRO and PROSPECT US Registries Prof. Halima Bello-Manga - Phase 3, Randomized, HOPE Kids-2 Trial of Voxelotor in Children with SCD and Conditional TCD Prof. Halima Bello-Manga - RESOLVE: a Phase 3, Randomized Trial Evaluating Voxelotor for Leg Ulcer Healing in SCD Prof. Khaled Musallam - Survival and Morbidity Among Adults With Thalassemia in England: Retrospective Analysis Using Routine Healthcare Data Prof. Josu de la Fuente - Durable Clinical Benefits With Exagamglogene Autotemcel for Transfusion-dependent Thalassemia and Severe Sickle Cell Disease Dr Kofi Anie - Patient Advocacy Group Involvement in the Development of the MANAGE, MONITOR, REALIZE (MMR) Framework Main Plenary Hall - Rooms 8 & 11

	.	.
11:00 AM - 6:30 PM	Wednesday Registration & Information Desk is open for check in, material collection, and event information
11:05 AM - 11:25 AM	Wednesday Welcome Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
11:25 AM - 11:35 AM	Welcome Address Speaker: Biree Andemariam Main Plenary Hall - Rooms 8 & 11
11:40 AM - 12:40 PM	Legacy and Progress: A Conversation on the Past and Future of Sickle Cell & Thalassaemia Chair: Bijal Trivedi Speakers: Elliot Vichinsky (US) Maria Cappellini (Italy) Main Plenary Hall - Rooms 8 & 11
12:40 PM - 1:15 PM	What is the Primary Driver of Sickle Cell Disease? Moderator: Andrew Campbell Speakers: Enrico Novelli (US) - Vascular Dysfunction Francesca Vinchi (US) - Intrinsic Red Blood Cell Properties Olivier Hermine (France) - Circulating Plasma and Inflammatory Mediators David Rees (UK) - Extrinsic Influences (Environment and Psychosocial Factors) Main Plenary Hall - Rooms 8 & 11
1:15 PM - 2:00 PM	Researcher Lunch
1:15 PM - 2:00 PM	Wednesday Lunch (Networking & Exhibition) Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
2:00 PM - 3:00 PM	Advancing thalassemia management: Insights into clinical data and disease burden Sponsor: Agios Main Plenary Hall - Rooms 8 & 11
3:00 PM - 3:05 PM	Break
3:05 PM - 4:05 PM	Sickle Cell Disease: The Role of Neurocognitive Assessments in Sickle Cell Disease Chair: Jerlym Porter Speakers: Jennifer Longoria (US) - Neurocognitive assessments in SCD, role in supporting education and employment Mary Ampomah (Ghana) - Neurocognitive assessment-- the African Perspective David Calvet (France) - Neurocognitive assessment in adult patients with SCD Room 17
4:05 PM - 4:40 PM	Wednesday Afternoon Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
4:40 PM - 6:30 PM	ASCAT 2025 Top Abstracts Showcase Chair:Raffaella Colombatti Speakers: Dr Stella Malangahe - Preliminary results of Allogeneic Hematopoietic Stem Cell Transplantation for Sickle Cell Disease in Tanzania Prof. Biree Andemariam - Voxelotor Safety and Effectiveness in Patients With SCD in the RETRO and PROSPECT US Registries Prof. Halima Bello-Manga - Phase 3, Randomized, HOPE Kids-2 Trial of Voxelotor in Children with SCD and Conditional TCD Prof. Halima Bello-Manga - RESOLVE: a Phase 3, Randomized Trial Evaluating Voxelotor for Leg Ulcer Healing in SCD Prof. Khaled Musallam - Survival and Morbidity Among Adults With Thalassemia in England: Retrospective Analysis Using Routine Healthcare Data Prof. Josu de la Fuente - Durable Clinical Benefits With Exagamglogene Autotemcel for Transfusion-dependent Thalassemia and Severe Sickle Cell Disease Dr Kofi Anie - Patient Advocacy Group Involvement in the Development of the MANAGE, MONITOR, REALIZE (MMR) Framework Main Plenary Hall - Rooms 8 & 11

	.
11:00 AM - 6:30 PM	Wednesday Registration & Information Desk is open for check in, material collection, and event information
11:05 AM - 11:25 AM	Wednesday Welcome Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
11:25 AM - 11:35 AM	Welcome Address Speaker: Biree Andemariam Main Plenary Hall - Rooms 8 & 11
11:40 AM - 12:40 PM	Legacy and Progress: A Conversation on the Past and Future of Sickle Cell & Thalassaemia Chair: Bijal Trivedi Speakers: Elliot Vichinsky (US) Maria Cappellini (Italy) Main Plenary Hall - Rooms 8 & 11
12:40 PM - 1:15 PM	What is the Primary Driver of Sickle Cell Disease? Moderator: Andrew Campbell Speakers: Enrico Novelli (US) - Vascular Dysfunction Francesca Vinchi (US) - Intrinsic Red Blood Cell Properties Olivier Hermine (France) - Circulating Plasma and Inflammatory Mediators David Rees (UK) - Extrinsic Influences (Environment and Psychosocial Factors) Main Plenary Hall - Rooms 8 & 11
1:15 PM - 2:00 PM	Researcher Lunch
1:15 PM - 2:00 PM	Wednesday Lunch (Networking & Exhibition) Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
2:00 PM - 3:00 PM	Advancing thalassemia management: Insights into clinical data and disease burden Sponsor: Agios Main Plenary Hall - Rooms 8 & 11
3:00 PM - 3:05 PM	Break
3:05 PM - 4:05 PM
4:05 PM - 4:40 PM	Wednesday Afternoon Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
4:40 PM - 6:30 PM	ASCAT 2025 Top Abstracts Showcase Chair:Raffaella Colombatti Speakers: Dr Stella Malangahe - Preliminary results of Allogeneic Hematopoietic Stem Cell Transplantation for Sickle Cell Disease in Tanzania Prof. Biree Andemariam - Voxelotor Safety and Effectiveness in Patients With SCD in the RETRO and PROSPECT US Registries Prof. Halima Bello-Manga - Phase 3, Randomized, HOPE Kids-2 Trial of Voxelotor in Children with SCD and Conditional TCD Prof. Halima Bello-Manga - RESOLVE: a Phase 3, Randomized Trial Evaluating Voxelotor for Leg Ulcer Healing in SCD Prof. Khaled Musallam - Survival and Morbidity Among Adults With Thalassemia in England: Retrospective Analysis Using Routine Healthcare Data Prof. Josu de la Fuente - Durable Clinical Benefits With Exagamglogene Autotemcel for Transfusion-dependent Thalassemia and Severe Sickle Cell Disease Dr Kofi Anie - Patient Advocacy Group Involvement in the Development of the MANAGE, MONITOR, REALIZE (MMR) Framework Main Plenary Hall - Rooms 8 & 11

	.
11:00 AM - 6:30 PM	Wednesday Registration & Information Desk is open for check in, material collection, and event information
11:05 AM - 11:25 AM	Wednesday Welcome Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
11:25 AM - 11:35 AM	Welcome Address Speaker: Biree Andemariam Main Plenary Hall - Rooms 8 & 11
11:40 AM - 12:40 PM	Legacy and Progress: A Conversation on the Past and Future of Sickle Cell & Thalassaemia Chair: Bijal Trivedi Speakers: Elliot Vichinsky (US) Maria Cappellini (Italy) Main Plenary Hall - Rooms 8 & 11
12:40 PM - 1:15 PM	What is the Primary Driver of Sickle Cell Disease? Moderator: Andrew Campbell Speakers: Enrico Novelli (US) - Vascular Dysfunction Francesca Vinchi (US) - Intrinsic Red Blood Cell Properties Olivier Hermine (France) - Circulating Plasma and Inflammatory Mediators David Rees (UK) - Extrinsic Influences (Environment and Psychosocial Factors) Main Plenary Hall - Rooms 8 & 11
1:15 PM - 2:00 PM	Researcher Lunch
1:15 PM - 2:00 PM	Wednesday Lunch (Networking & Exhibition) Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
2:00 PM - 3:00 PM	Advancing thalassemia management: Insights into clinical data and disease burden Sponsor: Agios Main Plenary Hall - Rooms 8 & 11
3:00 PM - 3:05 PM	Break
3:05 PM - 4:05 PM	Thalassaemia: Pathophysiology and Screening of Thalassemia Chair: Maria Cappellini Speakers: Irene Motta (Italy) - Update on Pathophysiology of Beta Thalassemia Paul Telfer (UK) - National Screening and Prevention Strategies – the Keys to the More Effective Control of Haemoglobin Disorders Frederic Piel (UK) - Thalassemia Population Screening Room 14
4:05 PM - 4:40 PM	Wednesday Afternoon Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
4:40 PM - 6:30 PM	ASCAT 2025 Top Abstracts Showcase Chair:Raffaella Colombatti Speakers: Dr Stella Malangahe - Preliminary results of Allogeneic Hematopoietic Stem Cell Transplantation for Sickle Cell Disease in Tanzania Prof. Biree Andemariam - Voxelotor Safety and Effectiveness in Patients With SCD in the RETRO and PROSPECT US Registries Prof. Halima Bello-Manga - Phase 3, Randomized, HOPE Kids-2 Trial of Voxelotor in Children with SCD and Conditional TCD Prof. Halima Bello-Manga - RESOLVE: a Phase 3, Randomized Trial Evaluating Voxelotor for Leg Ulcer Healing in SCD Prof. Khaled Musallam - Survival and Morbidity Among Adults With Thalassemia in England: Retrospective Analysis Using Routine Healthcare Data Prof. Josu de la Fuente - Durable Clinical Benefits With Exagamglogene Autotemcel for Transfusion-dependent Thalassemia and Severe Sickle Cell Disease Dr Kofi Anie - Patient Advocacy Group Involvement in the Development of the MANAGE, MONITOR, REALIZE (MMR) Framework Main Plenary Hall - Rooms 8 & 11

	.
11:00 AM - 6:30 PM	Wednesday Registration & Information Desk is open for check in, material collection, and event information
11:05 AM - 11:25 AM	Wednesday Welcome Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
11:25 AM - 11:35 AM	Welcome Address Speaker: Biree Andemariam Main Plenary Hall - Rooms 8 & 11
11:40 AM - 12:40 PM	Legacy and Progress: A Conversation on the Past and Future of Sickle Cell & Thalassaemia Chair: Bijal Trivedi Speakers: Elliot Vichinsky (US) Maria Cappellini (Italy) Main Plenary Hall - Rooms 8 & 11
12:40 PM - 1:15 PM	What is the Primary Driver of Sickle Cell Disease? Moderator: Andrew Campbell Speakers: Enrico Novelli (US) - Vascular Dysfunction Francesca Vinchi (US) - Intrinsic Red Blood Cell Properties Olivier Hermine (France) - Circulating Plasma and Inflammatory Mediators David Rees (UK) - Extrinsic Influences (Environment and Psychosocial Factors) Main Plenary Hall - Rooms 8 & 11
1:15 PM - 2:00 PM	Researcher Lunch
1:15 PM - 2:00 PM	Wednesday Lunch (Networking & Exhibition) Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
2:00 PM - 3:00 PM	Advancing thalassemia management: Insights into clinical data and disease burden Sponsor: Agios Main Plenary Hall - Rooms 8 & 11
3:00 PM - 3:05 PM	Break
3:05 PM - 4:05 PM	Basic Science: Haematopoiesis and Erythropoiesis Chair: Enrico Novelli Speakers: Annamaria Aprile (Italy) - Hematopoietic Stem Cell and Niche Defects in Thalassemia Sara El Hoss (France) - Erythropoiesis and Hematopoiesis Defects in SCD Letizia Fontana (France) - Epigenome Editing as a Novel Treatment for Sickle Cell Disease and Beta-thalassemia Room 13
4:05 PM - 4:40 PM	Wednesday Afternoon Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
4:40 PM - 6:30 PM	ASCAT 2025 Top Abstracts Showcase Chair:Raffaella Colombatti Speakers: Dr Stella Malangahe - Preliminary results of Allogeneic Hematopoietic Stem Cell Transplantation for Sickle Cell Disease in Tanzania Prof. Biree Andemariam - Voxelotor Safety and Effectiveness in Patients With SCD in the RETRO and PROSPECT US Registries Prof. Halima Bello-Manga - Phase 3, Randomized, HOPE Kids-2 Trial of Voxelotor in Children with SCD and Conditional TCD Prof. Halima Bello-Manga - RESOLVE: a Phase 3, Randomized Trial Evaluating Voxelotor for Leg Ulcer Healing in SCD Prof. Khaled Musallam - Survival and Morbidity Among Adults With Thalassemia in England: Retrospective Analysis Using Routine Healthcare Data Prof. Josu de la Fuente - Durable Clinical Benefits With Exagamglogene Autotemcel for Transfusion-dependent Thalassemia and Severe Sickle Cell Disease Dr Kofi Anie - Patient Advocacy Group Involvement in the Development of the MANAGE, MONITOR, REALIZE (MMR) Framework Main Plenary Hall - Rooms 8 & 11

	.
11:00 AM - 6:30 PM	Wednesday Registration & Information Desk is open for check in, material collection, and event information
11:05 AM - 11:25 AM	Wednesday Welcome Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
11:25 AM - 11:35 AM	Welcome Address Speaker: Biree Andemariam Main Plenary Hall - Rooms 8 & 11
11:40 AM - 12:40 PM	Legacy and Progress: A Conversation on the Past and Future of Sickle Cell & Thalassaemia Chair: Bijal Trivedi Speakers: Elliot Vichinsky (US) Maria Cappellini (Italy) Main Plenary Hall - Rooms 8 & 11
12:40 PM - 1:15 PM	What is the Primary Driver of Sickle Cell Disease? Moderator: Andrew Campbell Speakers: Enrico Novelli (US) - Vascular Dysfunction Francesca Vinchi (US) - Intrinsic Red Blood Cell Properties Olivier Hermine (France) - Circulating Plasma and Inflammatory Mediators David Rees (UK) - Extrinsic Influences (Environment and Psychosocial Factors) Main Plenary Hall - Rooms 8 & 11
1:15 PM - 2:00 PM	Researcher Lunch
1:15 PM - 2:00 PM	Wednesday Lunch (Networking & Exhibition) Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
2:00 PM - 3:00 PM	Advancing thalassemia management: Insights into clinical data and disease burden Sponsor: Agios Main Plenary Hall - Rooms 8 & 11
3:00 PM - 3:05 PM	Break
3:05 PM - 4:05 PM	Sickle Cell Disease: The Role of Neurocognitive Assessments in Sickle Cell Disease Chair: Jerlym Porter Speakers: Jennifer Longoria (US) - Neurocognitive assessments in SCD, role in supporting education and employment Mary Ampomah (Ghana) - Neurocognitive assessment-- the African Perspective David Calvet (France) - Neurocognitive assessment in adult patients with SCD Room 17
4:05 PM - 4:40 PM	Wednesday Afternoon Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
4:40 PM - 6:30 PM	ASCAT 2025 Top Abstracts Showcase Chair:Raffaella Colombatti Speakers: Dr Stella Malangahe - Preliminary results of Allogeneic Hematopoietic Stem Cell Transplantation for Sickle Cell Disease in Tanzania Prof. Biree Andemariam - Voxelotor Safety and Effectiveness in Patients With SCD in the RETRO and PROSPECT US Registries Prof. Halima Bello-Manga - Phase 3, Randomized, HOPE Kids-2 Trial of Voxelotor in Children with SCD and Conditional TCD Prof. Halima Bello-Manga - RESOLVE: a Phase 3, Randomized Trial Evaluating Voxelotor for Leg Ulcer Healing in SCD Prof. Khaled Musallam - Survival and Morbidity Among Adults With Thalassemia in England: Retrospective Analysis Using Routine Healthcare Data Prof. Josu de la Fuente - Durable Clinical Benefits With Exagamglogene Autotemcel for Transfusion-dependent Thalassemia and Severe Sickle Cell Disease Dr Kofi Anie - Patient Advocacy Group Involvement in the Development of the MANAGE, MONITOR, REALIZE (MMR) Framework Main Plenary Hall - Rooms 8 & 11

	.
11:00 AM - 6:30 PM	Wednesday Registration & Information Desk is open for check in, material collection, and event information
11:05 AM - 11:25 AM	Wednesday Welcome Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
11:25 AM - 11:35 AM	Welcome Address Speaker: Biree Andemariam Main Plenary Hall - Rooms 8 & 11
11:40 AM - 12:40 PM	Legacy and Progress: A Conversation on the Past and Future of Sickle Cell & Thalassaemia Chair: Bijal Trivedi Speakers: Elliot Vichinsky (US) Maria Cappellini (Italy) Main Plenary Hall - Rooms 8 & 11
12:40 PM - 1:15 PM	What is the Primary Driver of Sickle Cell Disease? Moderator: Andrew Campbell Speakers: Enrico Novelli (US) - Vascular Dysfunction Francesca Vinchi (US) - Intrinsic Red Blood Cell Properties Olivier Hermine (France) - Circulating Plasma and Inflammatory Mediators David Rees (UK) - Extrinsic Influences (Environment and Psychosocial Factors) Main Plenary Hall - Rooms 8 & 11
1:15 PM - 2:00 PM	Researcher Lunch
1:15 PM - 2:00 PM	Wednesday Lunch (Networking & Exhibition) Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
2:00 PM - 3:00 PM	Advancing thalassemia management: Insights into clinical data and disease burden Sponsor: Agios Main Plenary Hall - Rooms 8 & 11
3:00 PM - 3:05 PM	Break
3:05 PM - 4:05 PM
4:05 PM - 4:40 PM	Wednesday Afternoon Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
4:40 PM - 6:30 PM	ASCAT 2025 Top Abstracts Showcase Chair:Raffaella Colombatti Speakers: Dr Stella Malangahe - Preliminary results of Allogeneic Hematopoietic Stem Cell Transplantation for Sickle Cell Disease in Tanzania Prof. Biree Andemariam - Voxelotor Safety and Effectiveness in Patients With SCD in the RETRO and PROSPECT US Registries Prof. Halima Bello-Manga - Phase 3, Randomized, HOPE Kids-2 Trial of Voxelotor in Children with SCD and Conditional TCD Prof. Halima Bello-Manga - RESOLVE: a Phase 3, Randomized Trial Evaluating Voxelotor for Leg Ulcer Healing in SCD Prof. Khaled Musallam - Survival and Morbidity Among Adults With Thalassemia in England: Retrospective Analysis Using Routine Healthcare Data Prof. Josu de la Fuente - Durable Clinical Benefits With Exagamglogene Autotemcel for Transfusion-dependent Thalassemia and Severe Sickle Cell Disease Dr Kofi Anie - Patient Advocacy Group Involvement in the Development of the MANAGE, MONITOR, REALIZE (MMR) Framework Main Plenary Hall - Rooms 8 & 11

	.
11:00 AM - 6:30 PM	Wednesday Registration & Information Desk is open for check in, material collection, and event information
11:05 AM - 11:25 AM	Wednesday Welcome Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
11:25 AM - 11:35 AM	Welcome Address Speaker: Biree Andemariam Main Plenary Hall - Rooms 8 & 11
11:40 AM - 12:40 PM	Legacy and Progress: A Conversation on the Past and Future of Sickle Cell & Thalassaemia Chair: Bijal Trivedi Speakers: Elliot Vichinsky (US) Maria Cappellini (Italy) Main Plenary Hall - Rooms 8 & 11
12:40 PM - 1:15 PM	What is the Primary Driver of Sickle Cell Disease? Moderator: Andrew Campbell Speakers: Enrico Novelli (US) - Vascular Dysfunction Francesca Vinchi (US) - Intrinsic Red Blood Cell Properties Olivier Hermine (France) - Circulating Plasma and Inflammatory Mediators David Rees (UK) - Extrinsic Influences (Environment and Psychosocial Factors) Main Plenary Hall - Rooms 8 & 11
1:15 PM - 2:00 PM	Researcher Lunch
1:15 PM - 2:00 PM	Wednesday Lunch (Networking & Exhibition) Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
2:00 PM - 3:00 PM	Advancing thalassemia management: Insights into clinical data and disease burden Sponsor: Agios Main Plenary Hall - Rooms 8 & 11
3:00 PM - 3:05 PM	Break
3:05 PM - 4:05 PM
4:05 PM - 4:40 PM	Wednesday Afternoon Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
4:40 PM - 6:30 PM	ASCAT 2025 Top Abstracts Showcase Chair:Raffaella Colombatti Speakers: Dr Stella Malangahe - Preliminary results of Allogeneic Hematopoietic Stem Cell Transplantation for Sickle Cell Disease in Tanzania Prof. Biree Andemariam - Voxelotor Safety and Effectiveness in Patients With SCD in the RETRO and PROSPECT US Registries Prof. Halima Bello-Manga - Phase 3, Randomized, HOPE Kids-2 Trial of Voxelotor in Children with SCD and Conditional TCD Prof. Halima Bello-Manga - RESOLVE: a Phase 3, Randomized Trial Evaluating Voxelotor for Leg Ulcer Healing in SCD Prof. Khaled Musallam - Survival and Morbidity Among Adults With Thalassemia in England: Retrospective Analysis Using Routine Healthcare Data Prof. Josu de la Fuente - Durable Clinical Benefits With Exagamglogene Autotemcel for Transfusion-dependent Thalassemia and Severe Sickle Cell Disease Dr Kofi Anie - Patient Advocacy Group Involvement in the Development of the MANAGE, MONITOR, REALIZE (MMR) Framework Main Plenary Hall - Rooms 8 & 11

Thursday, October 2, 2025

	.	.	.	.	.
7:45 AM - 5:30 PM	Thursday Registration & Information Desk is open for check in, material collection, and event information
8:00 AM - 8:45 AM	Meet the Expert Speakers: Steven Okoli (UK) - From Lab to Community through developing Research Infrastructure, Collaboration and Patient Engagement to improve Sickle Cell Research - Room 14 Mariam Kayle (US) - Nurse-Led Research in Sickle Cell Disease - Main Plenary Hall Minke Rab (Netherlands) - Focus on Haemoglobin SC Disease - Room 17 Ibrahim Idris (Nigeria) - Management of Priapism - Room 13 Khaled Musallam (UAE) - Chelation Therapy in SCD and Thalassemia - Room 15 Lan-Lan Smith (UK) - How to Write a Scientific Paper - Main Plenary Hall Sara El Hoss (France) and David Rees (UK) - Designing a Research Study: “Bench to Bedside Research” - Main Plenary Hall
8:00 AM - 9:00 AM	Thursday Welcome Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
9:00 AM - 10:00 AM	Basic Science: Research Advances in Pathophysiology of Sickle Cell Disease and Thalassaemia Chair: Sara El Hoss Speakers: Francesca Vinchi (US) - Heme/Iron-driven inflammation in Sickle Cell Disease and Beta Thalassaemia Olivier Hermine (France) - The Role of MAST Cells and Basophils in Sickle Cell Disease Marja Hurley (US) - Mechanisms of Altered Bone Homeostasis in Sickle Cell Disease Main Plenary Hall - Rooms 8 & 11
10:00 AM - 11:30 AM	Poster Viewing & Networking Reception All registered delegates welcome. Poster Hall - Room 7 & 12
11:10 AM - 11:40 AM	Hypoxic Red Blood Cells: The Future for Patient Transfusions? Sponsor: Hemanext Room 13
11:45 AM - 12:45 PM	Patient-centred decision-making in haemoglobinopathies: Considerations for transplant Sponsor: Vertex Main Plenary Hall - Rooms 8 & 11 - HCP's Only
12:45 PM - 1:45 PM	Thursday Lunch (Networking & Exhibition) Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
1:00 PM - 1:45 PM	Conducting SCD Trials in Sub-Saharan Africa: Milestones, Insights and Xcene Research’s Impact Sponsor: Xcene Research Room 13
1:00 PM - 5:00 PM					Patient Parallel Session 1 Sexual Health Program for Patients - ERN-EuroBloodNet/RADeep Room 15 & 16
1:45 PM - 4:00 PM	Oral Abstract Presentation Session 1 Chairs: Sara El-Hoss & Thiago Trovati	Oral Abstract Presentation Session 2 Chairs: Natasha Archer & Enrico Novelli	Oral Abstract Presentation Session 3 Chair: Subarna Chakravorty	Oral Abstract Presentation Session 4 Chair: Wale Atoyebi
4:00 PM - 4:30 PM	Thursday Afternoon Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
4:30 PM - 5:30 PM	Basic Science: Genetics and Genomics Chair: Crawford Strunk Speakers: John Brewin (UK) - Genomics Update in Haemoglobinopathies Ambroise Wonkam (US) - FLT1 and other candidate fetal haemoglobin modifying loci in SCD in African Ancestries Andreas Glenthoj (Denmark) - Accurate Diagnosis of Hemoglobinopathies With Machine Learning Based on High-Throughput Proteomics Main Plenary Hall - Rooms 8 & 11	Thalassaemia: Emerging Therapies in Thalassemia Chair: Perla Eleftheriou Speakers: Kevin Kuo (Canada) - Mitapivat for TDT and NTDT Raffaella Origa (Italy) - Real World Experience with Luspatercept Shruti Kakkar (India) - Thalidomide (include monitoring algorithm) Room 13	Sickle Cell Disease: Registries & Real-World Evidence Generation Chair: Rachel Kesse-Adu Speakers: Noemi Roy (UK) - UK NHR Emmanuel Balandya (Tanzania) - SPARCO Alexis Thompson (US) - ASH-RC Room 14

	.	.
7:45 AM - 5:30 PM	Thursday Registration & Information Desk is open for check in, material collection, and event information
8:00 AM - 8:45 AM	Meet the Expert Speakers: Steven Okoli (UK) - From Lab to Community through developing Research Infrastructure, Collaboration and Patient Engagement to improve Sickle Cell Research - Room 14 Mariam Kayle (US) - Nurse-Led Research in Sickle Cell Disease - Main Plenary Hall Minke Rab (Netherlands) - Focus on Haemoglobin SC Disease - Room 17 Ibrahim Idris (Nigeria) - Management of Priapism - Room 13 Khaled Musallam (UAE) - Chelation Therapy in SCD and Thalassemia - Room 15 Lan-Lan Smith (UK) - How to Write a Scientific Paper - Main Plenary Hall Sara El Hoss (France) and David Rees (UK) - Designing a Research Study: “Bench to Bedside Research” - Main Plenary Hall
8:00 AM - 9:00 AM	Thursday Welcome Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
9:00 AM - 10:00 AM	Basic Science: Research Advances in Pathophysiology of Sickle Cell Disease and Thalassaemia Chair: Sara El Hoss Speakers: Francesca Vinchi (US) - Heme/Iron-driven inflammation in Sickle Cell Disease and Beta Thalassaemia Olivier Hermine (France) - The Role of MAST Cells and Basophils in Sickle Cell Disease Marja Hurley (US) - Mechanisms of Altered Bone Homeostasis in Sickle Cell Disease Main Plenary Hall - Rooms 8 & 11
10:00 AM - 11:30 AM	Poster Viewing & Networking Reception All registered delegates welcome. Poster Hall - Room 7 & 12
11:10 AM - 11:40 AM	Hypoxic Red Blood Cells: The Future for Patient Transfusions? Sponsor: Hemanext Room 13
11:45 AM - 12:45 PM	Patient-centred decision-making in haemoglobinopathies: Considerations for transplant Sponsor: Vertex Main Plenary Hall - Rooms 8 & 11 - HCP's Only
12:45 PM - 1:45 PM	Thursday Lunch (Networking & Exhibition) Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
1:00 PM - 1:45 PM	Conducting SCD Trials in Sub-Saharan Africa: Milestones, Insights and Xcene Research’s Impact Sponsor: Xcene Research Room 13
1:00 PM - 5:00 PM
1:45 PM - 4:00 PM	Oral Abstract Presentation Session 1 Chairs: Sara El-Hoss & Thiago Trovati	Oral Abstract Presentation Session 2 Chairs: Natasha Archer & Enrico Novelli
4:00 PM - 4:30 PM	Thursday Afternoon Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
4:30 PM - 5:30 PM	Basic Science: Genetics and Genomics Chair: Crawford Strunk Speakers: John Brewin (UK) - Genomics Update in Haemoglobinopathies Ambroise Wonkam (US) - FLT1 and other candidate fetal haemoglobin modifying loci in SCD in African Ancestries Andreas Glenthoj (Denmark) - Accurate Diagnosis of Hemoglobinopathies With Machine Learning Based on High-Throughput Proteomics Main Plenary Hall - Rooms 8 & 11	Thalassaemia: Emerging Therapies in Thalassemia Chair: Perla Eleftheriou Speakers: Kevin Kuo (Canada) - Mitapivat for TDT and NTDT Raffaella Origa (Italy) - Real World Experience with Luspatercept Shruti Kakkar (India) - Thalidomide (include monitoring algorithm) Room 13

	.	.
7:45 AM - 5:30 PM	Thursday Registration & Information Desk is open for check in, material collection, and event information
8:00 AM - 8:45 AM	Meet the Expert Speakers: Steven Okoli (UK) - From Lab to Community through developing Research Infrastructure, Collaboration and Patient Engagement to improve Sickle Cell Research - Room 14 Mariam Kayle (US) - Nurse-Led Research in Sickle Cell Disease - Main Plenary Hall Minke Rab (Netherlands) - Focus on Haemoglobin SC Disease - Room 17 Ibrahim Idris (Nigeria) - Management of Priapism - Room 13 Khaled Musallam (UAE) - Chelation Therapy in SCD and Thalassemia - Room 15 Lan-Lan Smith (UK) - How to Write a Scientific Paper - Main Plenary Hall Sara El Hoss (France) and David Rees (UK) - Designing a Research Study: “Bench to Bedside Research” - Main Plenary Hall
8:00 AM - 9:00 AM	Thursday Welcome Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
9:00 AM - 10:00 AM	Basic Science: Research Advances in Pathophysiology of Sickle Cell Disease and Thalassaemia Chair: Sara El Hoss Speakers: Francesca Vinchi (US) - Heme/Iron-driven inflammation in Sickle Cell Disease and Beta Thalassaemia Olivier Hermine (France) - The Role of MAST Cells and Basophils in Sickle Cell Disease Marja Hurley (US) - Mechanisms of Altered Bone Homeostasis in Sickle Cell Disease Main Plenary Hall - Rooms 8 & 11
10:00 AM - 11:30 AM	Poster Viewing & Networking Reception All registered delegates welcome. Poster Hall - Room 7 & 12
11:10 AM - 11:40 AM	Hypoxic Red Blood Cells: The Future for Patient Transfusions? Sponsor: Hemanext Room 13
11:45 AM - 12:45 PM	Patient-centred decision-making in haemoglobinopathies: Considerations for transplant Sponsor: Vertex Main Plenary Hall - Rooms 8 & 11 - HCP's Only
12:45 PM - 1:45 PM	Thursday Lunch (Networking & Exhibition) Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
1:00 PM - 1:45 PM	Conducting SCD Trials in Sub-Saharan Africa: Milestones, Insights and Xcene Research’s Impact Sponsor: Xcene Research Room 13
1:00 PM - 5:00 PM
1:45 PM - 4:00 PM	Oral Abstract Presentation Session 3 Chair: Subarna Chakravorty	Oral Abstract Presentation Session 4 Chair: Wale Atoyebi
4:00 PM - 4:30 PM	Thursday Afternoon Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
4:30 PM - 5:30 PM	Sickle Cell Disease: Registries & Real-World Evidence Generation Chair: Rachel Kesse-Adu Speakers: Noemi Roy (UK) - UK NHR Emmanuel Balandya (Tanzania) - SPARCO Alexis Thompson (US) - ASH-RC Room 14

	.
7:45 AM - 5:30 PM	Thursday Registration & Information Desk is open for check in, material collection, and event information
8:00 AM - 8:45 AM	Meet the Expert Speakers: Steven Okoli (UK) - From Lab to Community through developing Research Infrastructure, Collaboration and Patient Engagement to improve Sickle Cell Research - Room 14 Mariam Kayle (US) - Nurse-Led Research in Sickle Cell Disease - Main Plenary Hall Minke Rab (Netherlands) - Focus on Haemoglobin SC Disease - Room 17 Ibrahim Idris (Nigeria) - Management of Priapism - Room 13 Khaled Musallam (UAE) - Chelation Therapy in SCD and Thalassemia - Room 15 Lan-Lan Smith (UK) - How to Write a Scientific Paper - Main Plenary Hall Sara El Hoss (France) and David Rees (UK) - Designing a Research Study: “Bench to Bedside Research” - Main Plenary Hall
8:00 AM - 9:00 AM	Thursday Welcome Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
9:00 AM - 10:00 AM	Basic Science: Research Advances in Pathophysiology of Sickle Cell Disease and Thalassaemia Chair: Sara El Hoss Speakers: Francesca Vinchi (US) - Heme/Iron-driven inflammation in Sickle Cell Disease and Beta Thalassaemia Olivier Hermine (France) - The Role of MAST Cells and Basophils in Sickle Cell Disease Marja Hurley (US) - Mechanisms of Altered Bone Homeostasis in Sickle Cell Disease Main Plenary Hall - Rooms 8 & 11
10:00 AM - 11:30 AM	Poster Viewing & Networking Reception All registered delegates welcome. Poster Hall - Room 7 & 12
11:10 AM - 11:40 AM	Hypoxic Red Blood Cells: The Future for Patient Transfusions? Sponsor: Hemanext Room 13
11:45 AM - 12:45 PM	Patient-centred decision-making in haemoglobinopathies: Considerations for transplant Sponsor: Vertex Main Plenary Hall - Rooms 8 & 11 - HCP's Only
12:45 PM - 1:45 PM	Thursday Lunch (Networking & Exhibition) Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
1:00 PM - 1:45 PM	Conducting SCD Trials in Sub-Saharan Africa: Milestones, Insights and Xcene Research’s Impact Sponsor: Xcene Research Room 13
1:00 PM - 5:00 PM	Patient Parallel Session 1 Sexual Health Program for Patients - ERN-EuroBloodNet/RADeep Room 15 & 16
1:45 PM - 4:00 PM
4:00 PM - 4:30 PM	Thursday Afternoon Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
4:30 PM - 5:30 PM

	.
7:45 AM - 5:30 PM	Thursday Registration & Information Desk is open for check in, material collection, and event information
8:00 AM - 8:45 AM	Meet the Expert Speakers: Steven Okoli (UK) - From Lab to Community through developing Research Infrastructure, Collaboration and Patient Engagement to improve Sickle Cell Research - Room 14 Mariam Kayle (US) - Nurse-Led Research in Sickle Cell Disease - Main Plenary Hall Minke Rab (Netherlands) - Focus on Haemoglobin SC Disease - Room 17 Ibrahim Idris (Nigeria) - Management of Priapism - Room 13 Khaled Musallam (UAE) - Chelation Therapy in SCD and Thalassemia - Room 15 Lan-Lan Smith (UK) - How to Write a Scientific Paper - Main Plenary Hall Sara El Hoss (France) and David Rees (UK) - Designing a Research Study: “Bench to Bedside Research” - Main Plenary Hall
8:00 AM - 9:00 AM	Thursday Welcome Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
9:00 AM - 10:00 AM	Basic Science: Research Advances in Pathophysiology of Sickle Cell Disease and Thalassaemia Chair: Sara El Hoss Speakers: Francesca Vinchi (US) - Heme/Iron-driven inflammation in Sickle Cell Disease and Beta Thalassaemia Olivier Hermine (France) - The Role of MAST Cells and Basophils in Sickle Cell Disease Marja Hurley (US) - Mechanisms of Altered Bone Homeostasis in Sickle Cell Disease Main Plenary Hall - Rooms 8 & 11
10:00 AM - 11:30 AM	Poster Viewing & Networking Reception All registered delegates welcome. Poster Hall - Room 7 & 12
11:10 AM - 11:40 AM	Hypoxic Red Blood Cells: The Future for Patient Transfusions? Sponsor: Hemanext Room 13
11:45 AM - 12:45 PM	Patient-centred decision-making in haemoglobinopathies: Considerations for transplant Sponsor: Vertex Main Plenary Hall - Rooms 8 & 11 - HCP's Only
12:45 PM - 1:45 PM	Thursday Lunch (Networking & Exhibition) Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
1:00 PM - 1:45 PM	Conducting SCD Trials in Sub-Saharan Africa: Milestones, Insights and Xcene Research’s Impact Sponsor: Xcene Research Room 13
1:00 PM - 5:00 PM
1:45 PM - 4:00 PM	Oral Abstract Presentation Session 1 Chairs: Sara El-Hoss & Thiago Trovati
4:00 PM - 4:30 PM	Thursday Afternoon Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
4:30 PM - 5:30 PM	Basic Science: Genetics and Genomics Chair: Crawford Strunk Speakers: John Brewin (UK) - Genomics Update in Haemoglobinopathies Ambroise Wonkam (US) - FLT1 and other candidate fetal haemoglobin modifying loci in SCD in African Ancestries Andreas Glenthoj (Denmark) - Accurate Diagnosis of Hemoglobinopathies With Machine Learning Based on High-Throughput Proteomics Main Plenary Hall - Rooms 8 & 11

	.
7:45 AM - 5:30 PM	Thursday Registration & Information Desk is open for check in, material collection, and event information
8:00 AM - 8:45 AM	Meet the Expert Speakers: Steven Okoli (UK) - From Lab to Community through developing Research Infrastructure, Collaboration and Patient Engagement to improve Sickle Cell Research - Room 14 Mariam Kayle (US) - Nurse-Led Research in Sickle Cell Disease - Main Plenary Hall Minke Rab (Netherlands) - Focus on Haemoglobin SC Disease - Room 17 Ibrahim Idris (Nigeria) - Management of Priapism - Room 13 Khaled Musallam (UAE) - Chelation Therapy in SCD and Thalassemia - Room 15 Lan-Lan Smith (UK) - How to Write a Scientific Paper - Main Plenary Hall Sara El Hoss (France) and David Rees (UK) - Designing a Research Study: “Bench to Bedside Research” - Main Plenary Hall
8:00 AM - 9:00 AM	Thursday Welcome Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
9:00 AM - 10:00 AM	Basic Science: Research Advances in Pathophysiology of Sickle Cell Disease and Thalassaemia Chair: Sara El Hoss Speakers: Francesca Vinchi (US) - Heme/Iron-driven inflammation in Sickle Cell Disease and Beta Thalassaemia Olivier Hermine (France) - The Role of MAST Cells and Basophils in Sickle Cell Disease Marja Hurley (US) - Mechanisms of Altered Bone Homeostasis in Sickle Cell Disease Main Plenary Hall - Rooms 8 & 11
10:00 AM - 11:30 AM	Poster Viewing & Networking Reception All registered delegates welcome. Poster Hall - Room 7 & 12
11:10 AM - 11:40 AM	Hypoxic Red Blood Cells: The Future for Patient Transfusions? Sponsor: Hemanext Room 13
11:45 AM - 12:45 PM	Patient-centred decision-making in haemoglobinopathies: Considerations for transplant Sponsor: Vertex Main Plenary Hall - Rooms 8 & 11 - HCP's Only
12:45 PM - 1:45 PM	Thursday Lunch (Networking & Exhibition) Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
1:00 PM - 1:45 PM	Conducting SCD Trials in Sub-Saharan Africa: Milestones, Insights and Xcene Research’s Impact Sponsor: Xcene Research Room 13
1:00 PM - 5:00 PM
1:45 PM - 4:00 PM	Oral Abstract Presentation Session 2 Chairs: Natasha Archer & Enrico Novelli
4:00 PM - 4:30 PM	Thursday Afternoon Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
4:30 PM - 5:30 PM	Thalassaemia: Emerging Therapies in Thalassemia Chair: Perla Eleftheriou Speakers: Kevin Kuo (Canada) - Mitapivat for TDT and NTDT Raffaella Origa (Italy) - Real World Experience with Luspatercept Shruti Kakkar (India) - Thalidomide (include monitoring algorithm) Room 13

	.
7:45 AM - 5:30 PM	Thursday Registration & Information Desk is open for check in, material collection, and event information
8:00 AM - 8:45 AM	Meet the Expert Speakers: Steven Okoli (UK) - From Lab to Community through developing Research Infrastructure, Collaboration and Patient Engagement to improve Sickle Cell Research - Room 14 Mariam Kayle (US) - Nurse-Led Research in Sickle Cell Disease - Main Plenary Hall Minke Rab (Netherlands) - Focus on Haemoglobin SC Disease - Room 17 Ibrahim Idris (Nigeria) - Management of Priapism - Room 13 Khaled Musallam (UAE) - Chelation Therapy in SCD and Thalassemia - Room 15 Lan-Lan Smith (UK) - How to Write a Scientific Paper - Main Plenary Hall Sara El Hoss (France) and David Rees (UK) - Designing a Research Study: “Bench to Bedside Research” - Main Plenary Hall
8:00 AM - 9:00 AM	Thursday Welcome Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
9:00 AM - 10:00 AM	Basic Science: Research Advances in Pathophysiology of Sickle Cell Disease and Thalassaemia Chair: Sara El Hoss Speakers: Francesca Vinchi (US) - Heme/Iron-driven inflammation in Sickle Cell Disease and Beta Thalassaemia Olivier Hermine (France) - The Role of MAST Cells and Basophils in Sickle Cell Disease Marja Hurley (US) - Mechanisms of Altered Bone Homeostasis in Sickle Cell Disease Main Plenary Hall - Rooms 8 & 11
10:00 AM - 11:30 AM	Poster Viewing & Networking Reception All registered delegates welcome. Poster Hall - Room 7 & 12
11:10 AM - 11:40 AM	Hypoxic Red Blood Cells: The Future for Patient Transfusions? Sponsor: Hemanext Room 13
11:45 AM - 12:45 PM	Patient-centred decision-making in haemoglobinopathies: Considerations for transplant Sponsor: Vertex Main Plenary Hall - Rooms 8 & 11 - HCP's Only
12:45 PM - 1:45 PM	Thursday Lunch (Networking & Exhibition) Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
1:00 PM - 1:45 PM	Conducting SCD Trials in Sub-Saharan Africa: Milestones, Insights and Xcene Research’s Impact Sponsor: Xcene Research Room 13
1:00 PM - 5:00 PM
1:45 PM - 4:00 PM	Oral Abstract Presentation Session 3 Chair: Subarna Chakravorty
4:00 PM - 4:30 PM	Thursday Afternoon Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
4:30 PM - 5:30 PM	Sickle Cell Disease: Registries & Real-World Evidence Generation Chair: Rachel Kesse-Adu Speakers: Noemi Roy (UK) - UK NHR Emmanuel Balandya (Tanzania) - SPARCO Alexis Thompson (US) - ASH-RC Room 14

	.
7:45 AM - 5:30 PM	Thursday Registration & Information Desk is open for check in, material collection, and event information
8:00 AM - 8:45 AM	Meet the Expert Speakers: Steven Okoli (UK) - From Lab to Community through developing Research Infrastructure, Collaboration and Patient Engagement to improve Sickle Cell Research - Room 14 Mariam Kayle (US) - Nurse-Led Research in Sickle Cell Disease - Main Plenary Hall Minke Rab (Netherlands) - Focus on Haemoglobin SC Disease - Room 17 Ibrahim Idris (Nigeria) - Management of Priapism - Room 13 Khaled Musallam (UAE) - Chelation Therapy in SCD and Thalassemia - Room 15 Lan-Lan Smith (UK) - How to Write a Scientific Paper - Main Plenary Hall Sara El Hoss (France) and David Rees (UK) - Designing a Research Study: “Bench to Bedside Research” - Main Plenary Hall
8:00 AM - 9:00 AM	Thursday Welcome Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
9:00 AM - 10:00 AM	Basic Science: Research Advances in Pathophysiology of Sickle Cell Disease and Thalassaemia Chair: Sara El Hoss Speakers: Francesca Vinchi (US) - Heme/Iron-driven inflammation in Sickle Cell Disease and Beta Thalassaemia Olivier Hermine (France) - The Role of MAST Cells and Basophils in Sickle Cell Disease Marja Hurley (US) - Mechanisms of Altered Bone Homeostasis in Sickle Cell Disease Main Plenary Hall - Rooms 8 & 11
10:00 AM - 11:30 AM	Poster Viewing & Networking Reception All registered delegates welcome. Poster Hall - Room 7 & 12
11:10 AM - 11:40 AM	Hypoxic Red Blood Cells: The Future for Patient Transfusions? Sponsor: Hemanext Room 13
11:45 AM - 12:45 PM	Patient-centred decision-making in haemoglobinopathies: Considerations for transplant Sponsor: Vertex Main Plenary Hall - Rooms 8 & 11 - HCP's Only
12:45 PM - 1:45 PM	Thursday Lunch (Networking & Exhibition) Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
1:00 PM - 1:45 PM	Conducting SCD Trials in Sub-Saharan Africa: Milestones, Insights and Xcene Research’s Impact Sponsor: Xcene Research Room 13
1:00 PM - 5:00 PM
1:45 PM - 4:00 PM	Oral Abstract Presentation Session 4 Chair: Wale Atoyebi
4:00 PM - 4:30 PM	Thursday Afternoon Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
4:30 PM - 5:30 PM

	.
7:45 AM - 5:30 PM	Thursday Registration & Information Desk is open for check in, material collection, and event information
8:00 AM - 8:45 AM	Meet the Expert Speakers: Steven Okoli (UK) - From Lab to Community through developing Research Infrastructure, Collaboration and Patient Engagement to improve Sickle Cell Research - Room 14 Mariam Kayle (US) - Nurse-Led Research in Sickle Cell Disease - Main Plenary Hall Minke Rab (Netherlands) - Focus on Haemoglobin SC Disease - Room 17 Ibrahim Idris (Nigeria) - Management of Priapism - Room 13 Khaled Musallam (UAE) - Chelation Therapy in SCD and Thalassemia - Room 15 Lan-Lan Smith (UK) - How to Write a Scientific Paper - Main Plenary Hall Sara El Hoss (France) and David Rees (UK) - Designing a Research Study: “Bench to Bedside Research” - Main Plenary Hall
8:00 AM - 9:00 AM	Thursday Welcome Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
9:00 AM - 10:00 AM	Basic Science: Research Advances in Pathophysiology of Sickle Cell Disease and Thalassaemia Chair: Sara El Hoss Speakers: Francesca Vinchi (US) - Heme/Iron-driven inflammation in Sickle Cell Disease and Beta Thalassaemia Olivier Hermine (France) - The Role of MAST Cells and Basophils in Sickle Cell Disease Marja Hurley (US) - Mechanisms of Altered Bone Homeostasis in Sickle Cell Disease Main Plenary Hall - Rooms 8 & 11
10:00 AM - 11:30 AM	Poster Viewing & Networking Reception All registered delegates welcome. Poster Hall - Room 7 & 12
11:10 AM - 11:40 AM	Hypoxic Red Blood Cells: The Future for Patient Transfusions? Sponsor: Hemanext Room 13
11:45 AM - 12:45 PM	Patient-centred decision-making in haemoglobinopathies: Considerations for transplant Sponsor: Vertex Main Plenary Hall - Rooms 8 & 11 - HCP's Only
12:45 PM - 1:45 PM	Thursday Lunch (Networking & Exhibition) Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
1:00 PM - 1:45 PM	Conducting SCD Trials in Sub-Saharan Africa: Milestones, Insights and Xcene Research’s Impact Sponsor: Xcene Research Room 13
1:00 PM - 5:00 PM	Patient Parallel Session 1 Sexual Health Program for Patients - ERN-EuroBloodNet/RADeep Room 15 & 16
1:45 PM - 4:00 PM
4:00 PM - 4:30 PM	Thursday Afternoon Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
4:30 PM - 5:30 PM

Friday, October 3, 2025

	.	.	.	.	.
8:15 AM - 5:30 PM	Friday Registration & Information Desk is open for check in, material collection, and event information
8:35 AM - 9:00 AM	Friday Welcome
8:45 AM - 9:15 AM	Sickle Cell Disease: Implementing Clinical Trials in LMICs: Strategies & Opportunities Chair & Speaker: Russell Ware (US) Main Plenary Hall - Rooms 8 & 11
9:15 AM - 10:15 AM	Sickle Cell Disease: Defining Meaningful Endpoints in SCD Clinical Trials Chair: Biree Andemariam Speakers: Miguel Abboud (Lebanon) Andrew Campbell (US) Mohamed Yassin (Qatar) Main Plenary Hall - Rooms 8 & 11
10:15 AM - 10:45 AM	Friday Morning Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
10:45 AM - 11:15 AM	Thalassaemia: What Should Be the Optimal Pre-Transfusion Haemoglobin Target in Thalassaemia? Chair: Janet Kwiatkowski Speakers: Sujit Sheth (US) - The target should be > 11 g/dL Maria Cappellini (Italy) - The target should be 9.5 to 10.5 g/dL Main Plenary Hall - Rooms 8 & 11
11:15 AM - 12:15 PM	Bridging Polymerization, Inflammation, and Innovation in Sickle Cell Disease Sponsor: Sanofi Main Plenary Hall - Rooms 8 & 11
12:15 PM - 1:15 PM	HELIOS CA22119: Mapping Practices and Fostering Harmonisation in Haemoglobinopathies Sponsor: Helios Room 13
12:15 PM - 1:15 PM	Friday Lunch (Networking & Exhibition) Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
12:25 PM - 1:10 PM	Enhancing Care Through Partnerships With the Patient Community Sponsor: Pfizer Room 14
1:00 PM - 5:00 PM					Patient Parallel Session 2 Sexual Health Program for Patients - ERN-EuroBloodNet/RADeep Room 15 & 16
1:15 PM - 2:15 PM	Prognosis of SCD: Is Postal Code More Important Than the Genetic Code? Partner: European Hematology Association Chair: Mariane De Montalembert Speakers: Brigitte Ranque (France) - Estimating the risk of infant mortality attributable to SCD in sub-Saharan Africa David Rees (UK) - Prognostic factors in SCD, from genetics to environment Ambroise Wonkam (Cameroon, US) - Exploiting genomic variation in African populations to improve our understanding of HbF modifiers in sickle cell disease Main Plenary Hall - Rooms 8 & 11
2:15 PM - 2:45 PM	Should We Routinely Perform MRI Brain Assessment in All SCD Patients? Chair: Subarna Chakravorty Speakers: Raffaella Colombatti (Italy) - Paediatric Perspective Bart Biemond (Netherlands) - Adult Perspective Main Plenary Hall - Rooms 8 & 11
2:45 PM - 3:00 PM	Comfort Break
2:45 PM - 4:15 PM				Collaborative Research Catalyst Workshop Chairs: Rebecca McLoughlin & Sovereign Secondus Room 17
3:00 PM - 4:00 PM	Thalassaemia: Practical Thalassaemia Care for Nurses: Led by an Adult Haematologist Chair: Chair: Mariam Kayle Speakers: Farzana Sayani (Canada) • Transitioning Young Adults and the Role of the Adult Nurse • Key Aspects of Adult Thalassaemia Care • Caring for the Ageing Thalassaemia Patient • The Nurse’s Role in Ongoing Support • Pregnancy and Nurse Support Before, During and After Room 14	Successes and Challenges in Diagnosing and Treating Haemoglobinopathies in Africa Chairs: Cassandra Trimnell & Sunday Marshall Katung Speakers: Ibrahim Idris (Nigeria) Mona El Ghamrawy (Egypt) Bernhards Ogutu (Kenya) Patience Kuona (Zimbabwe) Main Plenary Hall - Rooms 8 & 11	Basic Science: Advances in Novel Therapeutic Strategies including Gene Therapy Chair: Bart Biemond Speakers: Laura Breda (US) - Advances in in-vivo gene therapy for Thalassemia and SCD Siana Nkya (Tanzania) - Pharmacogenomics in SCD / precision medicine Thiago Trovati Maciel (France) - Repurposing drugs for treatment of SCD – Focus on Luspatercept Room 13
4:00 PM - 4:30 PM	Friday Afternoon Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
4:30 PM - 5:30 PM	Thalassaemia: Managing Clinical Complications in Thalassaemia Chair: Wale Atoyebi Speakers: Julian Waung (UK) - Bone Disease in Thalassemia Efi Vlachaki (Greece) - Nephrolithiasis: Pathophysiology and Management Khaled Musallam (UAE) - Management of the Aging patient Main Plenary Hall - Rooms 8 & 11	Thalassaemia: Gene Therapy Chair: Alexis Thompson Speakers: Janet Kwiatkowski (US) - Real World Gene Therapy Experience in Thalassemia Josu de la Fuente (UK) - Challenges with Widespread Implementation of Gene Therapy Room 13	Sickle Cell Disease: Transfusion in SCD Chair: Halima Bello-Manga Speakers: Stella Chou (US) - Overview and recent advances in transfusion for SCD (hyperhaemolysis) Sara Trompeter (UK) - Red Cell Genotyping in Sickle Cell Disease (Europe) Bodunrin Osikomaiya (Nigeria) - Transfusion service in Sub Saharan Africa – challenges and opportunities Room 14	Educational Film Showcase Chair: Rachel Kesse-Adu 16.15: Red Cell Network - Acute pain presentation in sickle (Stuart Mcgunnigle/Martin Besser) 16.25: IBHO Bioresource - Increasing participation in research film (Olympia Amoo/Rhonda Henley-Smith) 16.35: Central London Community - Animation on SCD voiced by children (Lisa Cande/Emma Savie-Disu) 16.45: Sheffield HCC - Sickle Cell Nutrition Academy (Clare Samuelson/Claudine Matthews) 16.55: Kings College - Support strategies for parents during year one (Jane Chudleigh) 17.05: Q+A Room 17

	.	.
8:15 AM - 5:30 PM	Friday Registration & Information Desk is open for check in, material collection, and event information
8:35 AM - 9:00 AM	Friday Welcome
8:45 AM - 9:15 AM	Sickle Cell Disease: Implementing Clinical Trials in LMICs: Strategies & Opportunities Chair & Speaker: Russell Ware (US) Main Plenary Hall - Rooms 8 & 11
9:15 AM - 10:15 AM	Sickle Cell Disease: Defining Meaningful Endpoints in SCD Clinical Trials Chair: Biree Andemariam Speakers: Miguel Abboud (Lebanon) Andrew Campbell (US) Mohamed Yassin (Qatar) Main Plenary Hall - Rooms 8 & 11
10:15 AM - 10:45 AM	Friday Morning Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
10:45 AM - 11:15 AM	Thalassaemia: What Should Be the Optimal Pre-Transfusion Haemoglobin Target in Thalassaemia? Chair: Janet Kwiatkowski Speakers: Sujit Sheth (US) - The target should be > 11 g/dL Maria Cappellini (Italy) - The target should be 9.5 to 10.5 g/dL Main Plenary Hall - Rooms 8 & 11
11:15 AM - 12:15 PM	Bridging Polymerization, Inflammation, and Innovation in Sickle Cell Disease Sponsor: Sanofi Main Plenary Hall - Rooms 8 & 11
12:15 PM - 1:15 PM	HELIOS CA22119: Mapping Practices and Fostering Harmonisation in Haemoglobinopathies Sponsor: Helios Room 13
12:15 PM - 1:15 PM	Friday Lunch (Networking & Exhibition) Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
12:25 PM - 1:10 PM	Enhancing Care Through Partnerships With the Patient Community Sponsor: Pfizer Room 14
1:00 PM - 5:00 PM
1:15 PM - 2:15 PM	Prognosis of SCD: Is Postal Code More Important Than the Genetic Code? Partner: European Hematology Association Chair: Mariane De Montalembert Speakers: Brigitte Ranque (France) - Estimating the risk of infant mortality attributable to SCD in sub-Saharan Africa David Rees (UK) - Prognostic factors in SCD, from genetics to environment Ambroise Wonkam (Cameroon, US) - Exploiting genomic variation in African populations to improve our understanding of HbF modifiers in sickle cell disease Main Plenary Hall - Rooms 8 & 11
2:15 PM - 2:45 PM	Should We Routinely Perform MRI Brain Assessment in All SCD Patients? Chair: Subarna Chakravorty Speakers: Raffaella Colombatti (Italy) - Paediatric Perspective Bart Biemond (Netherlands) - Adult Perspective Main Plenary Hall - Rooms 8 & 11
2:45 PM - 3:00 PM	Comfort Break
2:45 PM - 4:15 PM
3:00 PM - 4:00 PM	Thalassaemia: Practical Thalassaemia Care for Nurses: Led by an Adult Haematologist Chair: Chair: Mariam Kayle Speakers: Farzana Sayani (Canada) • Transitioning Young Adults and the Role of the Adult Nurse • Key Aspects of Adult Thalassaemia Care • Caring for the Ageing Thalassaemia Patient • The Nurse’s Role in Ongoing Support • Pregnancy and Nurse Support Before, During and After Room 14	Successes and Challenges in Diagnosing and Treating Haemoglobinopathies in Africa Chairs: Cassandra Trimnell & Sunday Marshall Katung Speakers: Ibrahim Idris (Nigeria) Mona El Ghamrawy (Egypt) Bernhards Ogutu (Kenya) Patience Kuona (Zimbabwe) Main Plenary Hall - Rooms 8 & 11
4:00 PM - 4:30 PM	Friday Afternoon Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
4:30 PM - 5:30 PM	Thalassaemia: Managing Clinical Complications in Thalassaemia Chair: Wale Atoyebi Speakers: Julian Waung (UK) - Bone Disease in Thalassemia Efi Vlachaki (Greece) - Nephrolithiasis: Pathophysiology and Management Khaled Musallam (UAE) - Management of the Aging patient Main Plenary Hall - Rooms 8 & 11	Thalassaemia: Gene Therapy Chair: Alexis Thompson Speakers: Janet Kwiatkowski (US) - Real World Gene Therapy Experience in Thalassemia Josu de la Fuente (UK) - Challenges with Widespread Implementation of Gene Therapy Room 13

	.	.
8:15 AM - 5:30 PM	Friday Registration & Information Desk is open for check in, material collection, and event information
8:35 AM - 9:00 AM	Friday Welcome
8:45 AM - 9:15 AM	Sickle Cell Disease: Implementing Clinical Trials in LMICs: Strategies & Opportunities Chair & Speaker: Russell Ware (US) Main Plenary Hall - Rooms 8 & 11
9:15 AM - 10:15 AM	Sickle Cell Disease: Defining Meaningful Endpoints in SCD Clinical Trials Chair: Biree Andemariam Speakers: Miguel Abboud (Lebanon) Andrew Campbell (US) Mohamed Yassin (Qatar) Main Plenary Hall - Rooms 8 & 11
10:15 AM - 10:45 AM	Friday Morning Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
10:45 AM - 11:15 AM	Thalassaemia: What Should Be the Optimal Pre-Transfusion Haemoglobin Target in Thalassaemia? Chair: Janet Kwiatkowski Speakers: Sujit Sheth (US) - The target should be > 11 g/dL Maria Cappellini (Italy) - The target should be 9.5 to 10.5 g/dL Main Plenary Hall - Rooms 8 & 11
11:15 AM - 12:15 PM	Bridging Polymerization, Inflammation, and Innovation in Sickle Cell Disease Sponsor: Sanofi Main Plenary Hall - Rooms 8 & 11
12:15 PM - 1:15 PM	HELIOS CA22119: Mapping Practices and Fostering Harmonisation in Haemoglobinopathies Sponsor: Helios Room 13
12:15 PM - 1:15 PM	Friday Lunch (Networking & Exhibition) Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
12:25 PM - 1:10 PM	Enhancing Care Through Partnerships With the Patient Community Sponsor: Pfizer Room 14
1:00 PM - 5:00 PM
1:15 PM - 2:15 PM	Prognosis of SCD: Is Postal Code More Important Than the Genetic Code? Partner: European Hematology Association Chair: Mariane De Montalembert Speakers: Brigitte Ranque (France) - Estimating the risk of infant mortality attributable to SCD in sub-Saharan Africa David Rees (UK) - Prognostic factors in SCD, from genetics to environment Ambroise Wonkam (Cameroon, US) - Exploiting genomic variation in African populations to improve our understanding of HbF modifiers in sickle cell disease Main Plenary Hall - Rooms 8 & 11
2:15 PM - 2:45 PM	Should We Routinely Perform MRI Brain Assessment in All SCD Patients? Chair: Subarna Chakravorty Speakers: Raffaella Colombatti (Italy) - Paediatric Perspective Bart Biemond (Netherlands) - Adult Perspective Main Plenary Hall - Rooms 8 & 11
2:45 PM - 3:00 PM	Comfort Break
2:45 PM - 4:15 PM		Collaborative Research Catalyst Workshop Chairs: Rebecca McLoughlin & Sovereign Secondus Room 17
3:00 PM - 4:00 PM	Basic Science: Advances in Novel Therapeutic Strategies including Gene Therapy Chair: Bart Biemond Speakers: Laura Breda (US) - Advances in in-vivo gene therapy for Thalassemia and SCD Siana Nkya (Tanzania) - Pharmacogenomics in SCD / precision medicine Thiago Trovati Maciel (France) - Repurposing drugs for treatment of SCD – Focus on Luspatercept Room 13
4:00 PM - 4:30 PM	Friday Afternoon Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
4:30 PM - 5:30 PM	Sickle Cell Disease: Transfusion in SCD Chair: Halima Bello-Manga Speakers: Stella Chou (US) - Overview and recent advances in transfusion for SCD (hyperhaemolysis) Sara Trompeter (UK) - Red Cell Genotyping in Sickle Cell Disease (Europe) Bodunrin Osikomaiya (Nigeria) - Transfusion service in Sub Saharan Africa – challenges and opportunities Room 14	Educational Film Showcase Chair: Rachel Kesse-Adu 16.15: Red Cell Network - Acute pain presentation in sickle (Stuart Mcgunnigle/Martin Besser) 16.25: IBHO Bioresource - Increasing participation in research film (Olympia Amoo/Rhonda Henley-Smith) 16.35: Central London Community - Animation on SCD voiced by children (Lisa Cande/Emma Savie-Disu) 16.45: Sheffield HCC - Sickle Cell Nutrition Academy (Clare Samuelson/Claudine Matthews) 16.55: Kings College - Support strategies for parents during year one (Jane Chudleigh) 17.05: Q+A Room 17

	.
8:15 AM - 5:30 PM	Friday Registration & Information Desk is open for check in, material collection, and event information
8:35 AM - 9:00 AM	Friday Welcome
8:45 AM - 9:15 AM	Sickle Cell Disease: Implementing Clinical Trials in LMICs: Strategies & Opportunities Chair & Speaker: Russell Ware (US) Main Plenary Hall - Rooms 8 & 11
9:15 AM - 10:15 AM	Sickle Cell Disease: Defining Meaningful Endpoints in SCD Clinical Trials Chair: Biree Andemariam Speakers: Miguel Abboud (Lebanon) Andrew Campbell (US) Mohamed Yassin (Qatar) Main Plenary Hall - Rooms 8 & 11
10:15 AM - 10:45 AM	Friday Morning Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
10:45 AM - 11:15 AM	Thalassaemia: What Should Be the Optimal Pre-Transfusion Haemoglobin Target in Thalassaemia? Chair: Janet Kwiatkowski Speakers: Sujit Sheth (US) - The target should be > 11 g/dL Maria Cappellini (Italy) - The target should be 9.5 to 10.5 g/dL Main Plenary Hall - Rooms 8 & 11
11:15 AM - 12:15 PM	Bridging Polymerization, Inflammation, and Innovation in Sickle Cell Disease Sponsor: Sanofi Main Plenary Hall - Rooms 8 & 11
12:15 PM - 1:15 PM	HELIOS CA22119: Mapping Practices and Fostering Harmonisation in Haemoglobinopathies Sponsor: Helios Room 13
12:15 PM - 1:15 PM	Friday Lunch (Networking & Exhibition) Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
12:25 PM - 1:10 PM	Enhancing Care Through Partnerships With the Patient Community Sponsor: Pfizer Room 14
1:00 PM - 5:00 PM	Patient Parallel Session 2 Sexual Health Program for Patients - ERN-EuroBloodNet/RADeep Room 15 & 16
1:15 PM - 2:15 PM	Prognosis of SCD: Is Postal Code More Important Than the Genetic Code? Partner: European Hematology Association Chair: Mariane De Montalembert Speakers: Brigitte Ranque (France) - Estimating the risk of infant mortality attributable to SCD in sub-Saharan Africa David Rees (UK) - Prognostic factors in SCD, from genetics to environment Ambroise Wonkam (Cameroon, US) - Exploiting genomic variation in African populations to improve our understanding of HbF modifiers in sickle cell disease Main Plenary Hall - Rooms 8 & 11
2:15 PM - 2:45 PM	Should We Routinely Perform MRI Brain Assessment in All SCD Patients? Chair: Subarna Chakravorty Speakers: Raffaella Colombatti (Italy) - Paediatric Perspective Bart Biemond (Netherlands) - Adult Perspective Main Plenary Hall - Rooms 8 & 11
2:45 PM - 3:00 PM	Comfort Break
2:45 PM - 4:15 PM
3:00 PM - 4:00 PM
4:00 PM - 4:30 PM	Friday Afternoon Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
4:30 PM - 5:30 PM

	.
8:15 AM - 5:30 PM	Friday Registration & Information Desk is open for check in, material collection, and event information
8:35 AM - 9:00 AM	Friday Welcome
8:45 AM - 9:15 AM	Sickle Cell Disease: Implementing Clinical Trials in LMICs: Strategies & Opportunities Chair & Speaker: Russell Ware (US) Main Plenary Hall - Rooms 8 & 11
9:15 AM - 10:15 AM	Sickle Cell Disease: Defining Meaningful Endpoints in SCD Clinical Trials Chair: Biree Andemariam Speakers: Miguel Abboud (Lebanon) Andrew Campbell (US) Mohamed Yassin (Qatar) Main Plenary Hall - Rooms 8 & 11
10:15 AM - 10:45 AM	Friday Morning Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
10:45 AM - 11:15 AM	Thalassaemia: What Should Be the Optimal Pre-Transfusion Haemoglobin Target in Thalassaemia? Chair: Janet Kwiatkowski Speakers: Sujit Sheth (US) - The target should be > 11 g/dL Maria Cappellini (Italy) - The target should be 9.5 to 10.5 g/dL Main Plenary Hall - Rooms 8 & 11
11:15 AM - 12:15 PM	Bridging Polymerization, Inflammation, and Innovation in Sickle Cell Disease Sponsor: Sanofi Main Plenary Hall - Rooms 8 & 11
12:15 PM - 1:15 PM	HELIOS CA22119: Mapping Practices and Fostering Harmonisation in Haemoglobinopathies Sponsor: Helios Room 13
12:15 PM - 1:15 PM	Friday Lunch (Networking & Exhibition) Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
12:25 PM - 1:10 PM	Enhancing Care Through Partnerships With the Patient Community Sponsor: Pfizer Room 14
1:00 PM - 5:00 PM
1:15 PM - 2:15 PM	Prognosis of SCD: Is Postal Code More Important Than the Genetic Code? Partner: European Hematology Association Chair: Mariane De Montalembert Speakers: Brigitte Ranque (France) - Estimating the risk of infant mortality attributable to SCD in sub-Saharan Africa David Rees (UK) - Prognostic factors in SCD, from genetics to environment Ambroise Wonkam (Cameroon, US) - Exploiting genomic variation in African populations to improve our understanding of HbF modifiers in sickle cell disease Main Plenary Hall - Rooms 8 & 11
2:15 PM - 2:45 PM	Should We Routinely Perform MRI Brain Assessment in All SCD Patients? Chair: Subarna Chakravorty Speakers: Raffaella Colombatti (Italy) - Paediatric Perspective Bart Biemond (Netherlands) - Adult Perspective Main Plenary Hall - Rooms 8 & 11
2:45 PM - 3:00 PM	Comfort Break
2:45 PM - 4:15 PM
3:00 PM - 4:00 PM	Thalassaemia: Practical Thalassaemia Care for Nurses: Led by an Adult Haematologist Chair: Chair: Mariam Kayle Speakers: Farzana Sayani (Canada) • Transitioning Young Adults and the Role of the Adult Nurse • Key Aspects of Adult Thalassaemia Care • Caring for the Ageing Thalassaemia Patient • The Nurse’s Role in Ongoing Support • Pregnancy and Nurse Support Before, During and After Room 14
4:00 PM - 4:30 PM	Friday Afternoon Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
4:30 PM - 5:30 PM	Thalassaemia: Managing Clinical Complications in Thalassaemia Chair: Wale Atoyebi Speakers: Julian Waung (UK) - Bone Disease in Thalassemia Efi Vlachaki (Greece) - Nephrolithiasis: Pathophysiology and Management Khaled Musallam (UAE) - Management of the Aging patient Main Plenary Hall - Rooms 8 & 11

	.
8:15 AM - 5:30 PM	Friday Registration & Information Desk is open for check in, material collection, and event information
8:35 AM - 9:00 AM	Friday Welcome
8:45 AM - 9:15 AM	Sickle Cell Disease: Implementing Clinical Trials in LMICs: Strategies & Opportunities Chair & Speaker: Russell Ware (US) Main Plenary Hall - Rooms 8 & 11
9:15 AM - 10:15 AM	Sickle Cell Disease: Defining Meaningful Endpoints in SCD Clinical Trials Chair: Biree Andemariam Speakers: Miguel Abboud (Lebanon) Andrew Campbell (US) Mohamed Yassin (Qatar) Main Plenary Hall - Rooms 8 & 11
10:15 AM - 10:45 AM	Friday Morning Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
10:45 AM - 11:15 AM	Thalassaemia: What Should Be the Optimal Pre-Transfusion Haemoglobin Target in Thalassaemia? Chair: Janet Kwiatkowski Speakers: Sujit Sheth (US) - The target should be > 11 g/dL Maria Cappellini (Italy) - The target should be 9.5 to 10.5 g/dL Main Plenary Hall - Rooms 8 & 11
11:15 AM - 12:15 PM	Bridging Polymerization, Inflammation, and Innovation in Sickle Cell Disease Sponsor: Sanofi Main Plenary Hall - Rooms 8 & 11
12:15 PM - 1:15 PM	HELIOS CA22119: Mapping Practices and Fostering Harmonisation in Haemoglobinopathies Sponsor: Helios Room 13
12:15 PM - 1:15 PM	Friday Lunch (Networking & Exhibition) Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
12:25 PM - 1:10 PM	Enhancing Care Through Partnerships With the Patient Community Sponsor: Pfizer Room 14
1:00 PM - 5:00 PM
1:15 PM - 2:15 PM	Prognosis of SCD: Is Postal Code More Important Than the Genetic Code? Partner: European Hematology Association Chair: Mariane De Montalembert Speakers: Brigitte Ranque (France) - Estimating the risk of infant mortality attributable to SCD in sub-Saharan Africa David Rees (UK) - Prognostic factors in SCD, from genetics to environment Ambroise Wonkam (Cameroon, US) - Exploiting genomic variation in African populations to improve our understanding of HbF modifiers in sickle cell disease Main Plenary Hall - Rooms 8 & 11
2:15 PM - 2:45 PM	Should We Routinely Perform MRI Brain Assessment in All SCD Patients? Chair: Subarna Chakravorty Speakers: Raffaella Colombatti (Italy) - Paediatric Perspective Bart Biemond (Netherlands) - Adult Perspective Main Plenary Hall - Rooms 8 & 11
2:45 PM - 3:00 PM	Comfort Break
2:45 PM - 4:15 PM
3:00 PM - 4:00 PM	Successes and Challenges in Diagnosing and Treating Haemoglobinopathies in Africa Chairs: Cassandra Trimnell & Sunday Marshall Katung Speakers: Ibrahim Idris (Nigeria) Mona El Ghamrawy (Egypt) Bernhards Ogutu (Kenya) Patience Kuona (Zimbabwe) Main Plenary Hall - Rooms 8 & 11
4:00 PM - 4:30 PM	Friday Afternoon Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
4:30 PM - 5:30 PM	Thalassaemia: Gene Therapy Chair: Alexis Thompson Speakers: Janet Kwiatkowski (US) - Real World Gene Therapy Experience in Thalassemia Josu de la Fuente (UK) - Challenges with Widespread Implementation of Gene Therapy Room 13

	.
8:15 AM - 5:30 PM	Friday Registration & Information Desk is open for check in, material collection, and event information
8:35 AM - 9:00 AM	Friday Welcome
8:45 AM - 9:15 AM	Sickle Cell Disease: Implementing Clinical Trials in LMICs: Strategies & Opportunities Chair & Speaker: Russell Ware (US) Main Plenary Hall - Rooms 8 & 11
9:15 AM - 10:15 AM	Sickle Cell Disease: Defining Meaningful Endpoints in SCD Clinical Trials Chair: Biree Andemariam Speakers: Miguel Abboud (Lebanon) Andrew Campbell (US) Mohamed Yassin (Qatar) Main Plenary Hall - Rooms 8 & 11
10:15 AM - 10:45 AM	Friday Morning Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
10:45 AM - 11:15 AM	Thalassaemia: What Should Be the Optimal Pre-Transfusion Haemoglobin Target in Thalassaemia? Chair: Janet Kwiatkowski Speakers: Sujit Sheth (US) - The target should be > 11 g/dL Maria Cappellini (Italy) - The target should be 9.5 to 10.5 g/dL Main Plenary Hall - Rooms 8 & 11
11:15 AM - 12:15 PM	Bridging Polymerization, Inflammation, and Innovation in Sickle Cell Disease Sponsor: Sanofi Main Plenary Hall - Rooms 8 & 11
12:15 PM - 1:15 PM	HELIOS CA22119: Mapping Practices and Fostering Harmonisation in Haemoglobinopathies Sponsor: Helios Room 13
12:15 PM - 1:15 PM	Friday Lunch (Networking & Exhibition) Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
12:25 PM - 1:10 PM	Enhancing Care Through Partnerships With the Patient Community Sponsor: Pfizer Room 14
1:00 PM - 5:00 PM
1:15 PM - 2:15 PM	Prognosis of SCD: Is Postal Code More Important Than the Genetic Code? Partner: European Hematology Association Chair: Mariane De Montalembert Speakers: Brigitte Ranque (France) - Estimating the risk of infant mortality attributable to SCD in sub-Saharan Africa David Rees (UK) - Prognostic factors in SCD, from genetics to environment Ambroise Wonkam (Cameroon, US) - Exploiting genomic variation in African populations to improve our understanding of HbF modifiers in sickle cell disease Main Plenary Hall - Rooms 8 & 11
2:15 PM - 2:45 PM	Should We Routinely Perform MRI Brain Assessment in All SCD Patients? Chair: Subarna Chakravorty Speakers: Raffaella Colombatti (Italy) - Paediatric Perspective Bart Biemond (Netherlands) - Adult Perspective Main Plenary Hall - Rooms 8 & 11
2:45 PM - 3:00 PM	Comfort Break
2:45 PM - 4:15 PM
3:00 PM - 4:00 PM	Basic Science: Advances in Novel Therapeutic Strategies including Gene Therapy Chair: Bart Biemond Speakers: Laura Breda (US) - Advances in in-vivo gene therapy for Thalassemia and SCD Siana Nkya (Tanzania) - Pharmacogenomics in SCD / precision medicine Thiago Trovati Maciel (France) - Repurposing drugs for treatment of SCD – Focus on Luspatercept Room 13
4:00 PM - 4:30 PM	Friday Afternoon Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
4:30 PM - 5:30 PM	Sickle Cell Disease: Transfusion in SCD Chair: Halima Bello-Manga Speakers: Stella Chou (US) - Overview and recent advances in transfusion for SCD (hyperhaemolysis) Sara Trompeter (UK) - Red Cell Genotyping in Sickle Cell Disease (Europe) Bodunrin Osikomaiya (Nigeria) - Transfusion service in Sub Saharan Africa – challenges and opportunities Room 14

	.
8:15 AM - 5:30 PM	Friday Registration & Information Desk is open for check in, material collection, and event information
8:35 AM - 9:00 AM	Friday Welcome
8:45 AM - 9:15 AM	Sickle Cell Disease: Implementing Clinical Trials in LMICs: Strategies & Opportunities Chair & Speaker: Russell Ware (US) Main Plenary Hall - Rooms 8 & 11
9:15 AM - 10:15 AM	Sickle Cell Disease: Defining Meaningful Endpoints in SCD Clinical Trials Chair: Biree Andemariam Speakers: Miguel Abboud (Lebanon) Andrew Campbell (US) Mohamed Yassin (Qatar) Main Plenary Hall - Rooms 8 & 11
10:15 AM - 10:45 AM	Friday Morning Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
10:45 AM - 11:15 AM	Thalassaemia: What Should Be the Optimal Pre-Transfusion Haemoglobin Target in Thalassaemia? Chair: Janet Kwiatkowski Speakers: Sujit Sheth (US) - The target should be > 11 g/dL Maria Cappellini (Italy) - The target should be 9.5 to 10.5 g/dL Main Plenary Hall - Rooms 8 & 11
11:15 AM - 12:15 PM	Bridging Polymerization, Inflammation, and Innovation in Sickle Cell Disease Sponsor: Sanofi Main Plenary Hall - Rooms 8 & 11
12:15 PM - 1:15 PM	HELIOS CA22119: Mapping Practices and Fostering Harmonisation in Haemoglobinopathies Sponsor: Helios Room 13
12:15 PM - 1:15 PM	Friday Lunch (Networking & Exhibition) Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
12:25 PM - 1:10 PM	Enhancing Care Through Partnerships With the Patient Community Sponsor: Pfizer Room 14
1:00 PM - 5:00 PM
1:15 PM - 2:15 PM	Prognosis of SCD: Is Postal Code More Important Than the Genetic Code? Partner: European Hematology Association Chair: Mariane De Montalembert Speakers: Brigitte Ranque (France) - Estimating the risk of infant mortality attributable to SCD in sub-Saharan Africa David Rees (UK) - Prognostic factors in SCD, from genetics to environment Ambroise Wonkam (Cameroon, US) - Exploiting genomic variation in African populations to improve our understanding of HbF modifiers in sickle cell disease Main Plenary Hall - Rooms 8 & 11
2:15 PM - 2:45 PM	Should We Routinely Perform MRI Brain Assessment in All SCD Patients? Chair: Subarna Chakravorty Speakers: Raffaella Colombatti (Italy) - Paediatric Perspective Bart Biemond (Netherlands) - Adult Perspective Main Plenary Hall - Rooms 8 & 11
2:45 PM - 3:00 PM	Comfort Break
2:45 PM - 4:15 PM	Collaborative Research Catalyst Workshop Chairs: Rebecca McLoughlin & Sovereign Secondus Room 17
3:00 PM - 4:00 PM
4:00 PM - 4:30 PM	Friday Afternoon Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
4:30 PM - 5:30 PM	Educational Film Showcase Chair: Rachel Kesse-Adu 16.15: Red Cell Network - Acute pain presentation in sickle (Stuart Mcgunnigle/Martin Besser) 16.25: IBHO Bioresource - Increasing participation in research film (Olympia Amoo/Rhonda Henley-Smith) 16.35: Central London Community - Animation on SCD voiced by children (Lisa Cande/Emma Savie-Disu) 16.45: Sheffield HCC - Sickle Cell Nutrition Academy (Clare Samuelson/Claudine Matthews) 16.55: Kings College - Support strategies for parents during year one (Jane Chudleigh) 17.05: Q+A Room 17

	.
8:15 AM - 5:30 PM	Friday Registration & Information Desk is open for check in, material collection, and event information
8:35 AM - 9:00 AM	Friday Welcome
8:45 AM - 9:15 AM	Sickle Cell Disease: Implementing Clinical Trials in LMICs: Strategies & Opportunities Chair & Speaker: Russell Ware (US) Main Plenary Hall - Rooms 8 & 11
9:15 AM - 10:15 AM	Sickle Cell Disease: Defining Meaningful Endpoints in SCD Clinical Trials Chair: Biree Andemariam Speakers: Miguel Abboud (Lebanon) Andrew Campbell (US) Mohamed Yassin (Qatar) Main Plenary Hall - Rooms 8 & 11
10:15 AM - 10:45 AM	Friday Morning Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
10:45 AM - 11:15 AM	Thalassaemia: What Should Be the Optimal Pre-Transfusion Haemoglobin Target in Thalassaemia? Chair: Janet Kwiatkowski Speakers: Sujit Sheth (US) - The target should be > 11 g/dL Maria Cappellini (Italy) - The target should be 9.5 to 10.5 g/dL Main Plenary Hall - Rooms 8 & 11
11:15 AM - 12:15 PM	Bridging Polymerization, Inflammation, and Innovation in Sickle Cell Disease Sponsor: Sanofi Main Plenary Hall - Rooms 8 & 11
12:15 PM - 1:15 PM	HELIOS CA22119: Mapping Practices and Fostering Harmonisation in Haemoglobinopathies Sponsor: Helios Room 13
12:15 PM - 1:15 PM	Friday Lunch (Networking & Exhibition) Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
12:25 PM - 1:10 PM	Enhancing Care Through Partnerships With the Patient Community Sponsor: Pfizer Room 14
1:00 PM - 5:00 PM	Patient Parallel Session 2 Sexual Health Program for Patients - ERN-EuroBloodNet/RADeep Room 15 & 16
1:15 PM - 2:15 PM	Prognosis of SCD: Is Postal Code More Important Than the Genetic Code? Partner: European Hematology Association Chair: Mariane De Montalembert Speakers: Brigitte Ranque (France) - Estimating the risk of infant mortality attributable to SCD in sub-Saharan Africa David Rees (UK) - Prognostic factors in SCD, from genetics to environment Ambroise Wonkam (Cameroon, US) - Exploiting genomic variation in African populations to improve our understanding of HbF modifiers in sickle cell disease Main Plenary Hall - Rooms 8 & 11
2:15 PM - 2:45 PM	Should We Routinely Perform MRI Brain Assessment in All SCD Patients? Chair: Subarna Chakravorty Speakers: Raffaella Colombatti (Italy) - Paediatric Perspective Bart Biemond (Netherlands) - Adult Perspective Main Plenary Hall - Rooms 8 & 11
2:45 PM - 3:00 PM	Comfort Break
2:45 PM - 4:15 PM
3:00 PM - 4:00 PM
4:00 PM - 4:30 PM	Friday Afternoon Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
4:30 PM - 5:30 PM

Saturday, October 4, 2025

	.	.	.	.	.
8:30 AM - 3:15 PM	Saturday Registration & Information Desk is open for check in, material collection, and event information
9:00 AM - 11:15 AM	Oral Abstract Presentation Session 5 Chair: Samah Babiker	Oral Abstract Presentation Session 6 Chairs: Rachel Kesse Adu & Dipty Jain	Oral Abstract Presentation Session 7 Chair: Leon Tshilolo	Oral Abstract Presentation Session 8 Chair: Steven Okoli
10:00 AM - 2:00 PM					Patient Parallel Session 3 Sexual Health Program for Patients - ERN-EuroBloodNet/RADeep Room 15 & 16
11:15 AM - 11:30 PM	Saturday Morning Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
11:30 AM - 12:30 PM	Sickle Cell Disease: Patient- Reported Outcomes Chair: Nirmish Shah Speakers: Nirmish Shah (US) Cassandra Trimnell (US) Orlando Aggripa (UK) Main Plenary Hall - Rooms 8 & 11
12:30 PM - 1:00 PM	Saturday Lunch Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
1:00 PM - 2:00 PM	Thalassaemia: Challenges in the Management of Iron Chelation Chair: Salam Al Kindi Speakers: Janet Kwiatkowski (US) - Iron Reduction after Curative Therapy Perla Eleftheriou (UK) - Iron Chelation During Pregnancy Room 14	Regional Haemoglobinopathy Organisations Chair: Miguel Abboud Speakers: Soha Yazbeck (Lebanon) - Sickle Cell Programme AUB Michele Abi Saad (Lebanon) - TATAF Yann Lamarre (Jamaica) - CAREST Leon Tshilolo (DRC) - REDAC/Sickle In Africa Dipty Jain (India) - India Room 13	Sickle Cell Disease: Transition Across the Life Span Chair: Steven Okoli Speakers: Tarun Aurora (US) - Implementation of transition program across borders Samah Babiker (UK) - The transition of health care needs from young adult to older age Charity Oyediji (US) - Geriatric functional assessments in older SCD patients Room 17
2:00 PM - 3:00 PM	Patient Leadership & Perspectives: ERN EuroBloodnet Speakers: ERN EuroBloodnet Main Plenary Hall - Rooms 8 & 11
3:00 PM - 3:15 PM	Closing Address Speaker: Wale Atoyebi (UK) Main Plenary Hall - Rooms 8 & 11

	.	.
8:30 AM - 3:15 PM	Saturday Registration & Information Desk is open for check in, material collection, and event information
9:00 AM - 11:15 AM	Oral Abstract Presentation Session 5 Chair: Samah Babiker	Oral Abstract Presentation Session 6 Chairs: Rachel Kesse Adu & Dipty Jain
10:00 AM - 2:00 PM
11:15 AM - 11:30 PM	Saturday Morning Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
11:30 AM - 12:30 PM	Sickle Cell Disease: Patient- Reported Outcomes Chair: Nirmish Shah Speakers: Nirmish Shah (US) Cassandra Trimnell (US) Orlando Aggripa (UK) Main Plenary Hall - Rooms 8 & 11
12:30 PM - 1:00 PM	Saturday Lunch Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
1:00 PM - 2:00 PM	Thalassaemia: Challenges in the Management of Iron Chelation Chair: Salam Al Kindi Speakers: Janet Kwiatkowski (US) - Iron Reduction after Curative Therapy Perla Eleftheriou (UK) - Iron Chelation During Pregnancy Room 14	Regional Haemoglobinopathy Organisations Chair: Miguel Abboud Speakers: Soha Yazbeck (Lebanon) - Sickle Cell Programme AUB Michele Abi Saad (Lebanon) - TATAF Yann Lamarre (Jamaica) - CAREST Leon Tshilolo (DRC) - REDAC/Sickle In Africa Dipty Jain (India) - India Room 13
2:00 PM - 3:00 PM	Patient Leadership & Perspectives: ERN EuroBloodnet Speakers: ERN EuroBloodnet Main Plenary Hall - Rooms 8 & 11
3:00 PM - 3:15 PM	Closing Address Speaker: Wale Atoyebi (UK) Main Plenary Hall - Rooms 8 & 11

	.	.
8:30 AM - 3:15 PM	Saturday Registration & Information Desk is open for check in, material collection, and event information
9:00 AM - 11:15 AM	Oral Abstract Presentation Session 7 Chair: Leon Tshilolo	Oral Abstract Presentation Session 8 Chair: Steven Okoli
10:00 AM - 2:00 PM
11:15 AM - 11:30 PM	Saturday Morning Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
11:30 AM - 12:30 PM	Sickle Cell Disease: Patient- Reported Outcomes Chair: Nirmish Shah Speakers: Nirmish Shah (US) Cassandra Trimnell (US) Orlando Aggripa (UK) Main Plenary Hall - Rooms 8 & 11
12:30 PM - 1:00 PM	Saturday Lunch Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
1:00 PM - 2:00 PM	Sickle Cell Disease: Transition Across the Life Span Chair: Steven Okoli Speakers: Tarun Aurora (US) - Implementation of transition program across borders Samah Babiker (UK) - The transition of health care needs from young adult to older age Charity Oyediji (US) - Geriatric functional assessments in older SCD patients Room 17
2:00 PM - 3:00 PM	Patient Leadership & Perspectives: ERN EuroBloodnet Speakers: ERN EuroBloodnet Main Plenary Hall - Rooms 8 & 11
3:00 PM - 3:15 PM	Closing Address Speaker: Wale Atoyebi (UK) Main Plenary Hall - Rooms 8 & 11

	.
8:30 AM - 3:15 PM	Saturday Registration & Information Desk is open for check in, material collection, and event information
9:00 AM - 11:15 AM
10:00 AM - 2:00 PM	Patient Parallel Session 3 Sexual Health Program for Patients - ERN-EuroBloodNet/RADeep Room 15 & 16
11:15 AM - 11:30 PM	Saturday Morning Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
11:30 AM - 12:30 PM	Sickle Cell Disease: Patient- Reported Outcomes Chair: Nirmish Shah Speakers: Nirmish Shah (US) Cassandra Trimnell (US) Orlando Aggripa (UK) Main Plenary Hall - Rooms 8 & 11
12:30 PM - 1:00 PM	Saturday Lunch Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
1:00 PM - 2:00 PM
2:00 PM - 3:00 PM	Patient Leadership & Perspectives: ERN EuroBloodnet Speakers: ERN EuroBloodnet Main Plenary Hall - Rooms 8 & 11
3:00 PM - 3:15 PM	Closing Address Speaker: Wale Atoyebi (UK) Main Plenary Hall - Rooms 8 & 11

	.
8:30 AM - 3:15 PM	Saturday Registration & Information Desk is open for check in, material collection, and event information
9:00 AM - 11:15 AM	Oral Abstract Presentation Session 5 Chair: Samah Babiker
10:00 AM - 2:00 PM
11:15 AM - 11:30 PM	Saturday Morning Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
11:30 AM - 12:30 PM	Sickle Cell Disease: Patient- Reported Outcomes Chair: Nirmish Shah Speakers: Nirmish Shah (US) Cassandra Trimnell (US) Orlando Aggripa (UK) Main Plenary Hall - Rooms 8 & 11
12:30 PM - 1:00 PM	Saturday Lunch Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
1:00 PM - 2:00 PM	Thalassaemia: Challenges in the Management of Iron Chelation Chair: Salam Al Kindi Speakers: Janet Kwiatkowski (US) - Iron Reduction after Curative Therapy Perla Eleftheriou (UK) - Iron Chelation During Pregnancy Room 14
2:00 PM - 3:00 PM	Patient Leadership & Perspectives: ERN EuroBloodnet Speakers: ERN EuroBloodnet Main Plenary Hall - Rooms 8 & 11
3:00 PM - 3:15 PM	Closing Address Speaker: Wale Atoyebi (UK) Main Plenary Hall - Rooms 8 & 11

	.
8:30 AM - 3:15 PM	Saturday Registration & Information Desk is open for check in, material collection, and event information
9:00 AM - 11:15 AM	Oral Abstract Presentation Session 6 Chairs: Rachel Kesse Adu & Dipty Jain
10:00 AM - 2:00 PM
11:15 AM - 11:30 PM	Saturday Morning Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
11:30 AM - 12:30 PM	Sickle Cell Disease: Patient- Reported Outcomes Chair: Nirmish Shah Speakers: Nirmish Shah (US) Cassandra Trimnell (US) Orlando Aggripa (UK) Main Plenary Hall - Rooms 8 & 11
12:30 PM - 1:00 PM	Saturday Lunch Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
1:00 PM - 2:00 PM	Regional Haemoglobinopathy Organisations Chair: Miguel Abboud Speakers: Soha Yazbeck (Lebanon) - Sickle Cell Programme AUB Michele Abi Saad (Lebanon) - TATAF Yann Lamarre (Jamaica) - CAREST Leon Tshilolo (DRC) - REDAC/Sickle In Africa Dipty Jain (India) - India Room 13
2:00 PM - 3:00 PM	Patient Leadership & Perspectives: ERN EuroBloodnet Speakers: ERN EuroBloodnet Main Plenary Hall - Rooms 8 & 11
3:00 PM - 3:15 PM	Closing Address Speaker: Wale Atoyebi (UK) Main Plenary Hall - Rooms 8 & 11

	.
8:30 AM - 3:15 PM	Saturday Registration & Information Desk is open for check in, material collection, and event information
9:00 AM - 11:15 AM	Oral Abstract Presentation Session 7 Chair: Leon Tshilolo
10:00 AM - 2:00 PM
11:15 AM - 11:30 PM	Saturday Morning Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
11:30 AM - 12:30 PM	Sickle Cell Disease: Patient- Reported Outcomes Chair: Nirmish Shah Speakers: Nirmish Shah (US) Cassandra Trimnell (US) Orlando Aggripa (UK) Main Plenary Hall - Rooms 8 & 11
12:30 PM - 1:00 PM	Saturday Lunch Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
1:00 PM - 2:00 PM	Sickle Cell Disease: Transition Across the Life Span Chair: Steven Okoli Speakers: Tarun Aurora (US) - Implementation of transition program across borders Samah Babiker (UK) - The transition of health care needs from young adult to older age Charity Oyediji (US) - Geriatric functional assessments in older SCD patients Room 17
2:00 PM - 3:00 PM	Patient Leadership & Perspectives: ERN EuroBloodnet Speakers: ERN EuroBloodnet Main Plenary Hall - Rooms 8 & 11
3:00 PM - 3:15 PM	Closing Address Speaker: Wale Atoyebi (UK) Main Plenary Hall - Rooms 8 & 11

	.
8:30 AM - 3:15 PM	Saturday Registration & Information Desk is open for check in, material collection, and event information
9:00 AM - 11:15 AM	Oral Abstract Presentation Session 8 Chair: Steven Okoli
10:00 AM - 2:00 PM
11:15 AM - 11:30 PM	Saturday Morning Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
11:30 AM - 12:30 PM	Sickle Cell Disease: Patient- Reported Outcomes Chair: Nirmish Shah Speakers: Nirmish Shah (US) Cassandra Trimnell (US) Orlando Aggripa (UK) Main Plenary Hall - Rooms 8 & 11
12:30 PM - 1:00 PM	Saturday Lunch Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
1:00 PM - 2:00 PM
2:00 PM - 3:00 PM	Patient Leadership & Perspectives: ERN EuroBloodnet Speakers: ERN EuroBloodnet Main Plenary Hall - Rooms 8 & 11
3:00 PM - 3:15 PM	Closing Address Speaker: Wale Atoyebi (UK) Main Plenary Hall - Rooms 8 & 11

	.
8:30 AM - 3:15 PM	Saturday Registration & Information Desk is open for check in, material collection, and event information
9:00 AM - 11:15 AM
10:00 AM - 2:00 PM	Patient Parallel Session 3 Sexual Health Program for Patients - ERN-EuroBloodNet/RADeep Room 15 & 16
11:15 AM - 11:30 PM	Saturday Morning Break with Refreshments Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
11:30 AM - 12:30 PM	Sickle Cell Disease: Patient- Reported Outcomes Chair: Nirmish Shah Speakers: Nirmish Shah (US) Cassandra Trimnell (US) Orlando Aggripa (UK) Main Plenary Hall - Rooms 8 & 11
12:30 PM - 1:00 PM	Saturday Lunch Please be advised that the event will feature two distinct exhibition areas: Exhibition 1 – designated for non-Healthcare Professional (non-HCP) delegates Exhibition 2 – restricted to registered Healthcare Professionals (HCPs) and Other Relevant Decision Makers (ORDM's)
1:00 PM - 2:00 PM
2:00 PM - 3:00 PM	Patient Leadership & Perspectives: ERN EuroBloodnet Speakers: ERN EuroBloodnet Main Plenary Hall - Rooms 8 & 11
3:00 PM - 3:15 PM	Closing Address Speaker: Wale Atoyebi (UK) Main Plenary Hall - Rooms 8 & 11

You need to enable JavaScript to access this site.

Follow these instructions on how to enable JavaScript.

Internet Explorer

Select Tools from the top menu
Choose Internet Options
Click on the Security tab
Click on Custom Level
Scroll down until you see the section labelled Scripting
Under Active Scripting, select Enable and click OK

Google Chrome

Select the menu icon on the browser toolbar
Select Settings
Click the Show advanced settings... link then Content Settings in the Privacy section
Select Allow all sites to run JavaScript (recommended) and click Done

Safari (Mac)

Select Safari from the top menu
Choose Preferences
Choose Security
Select the checkbox next to Enable JavaScript