Oral Abstract Presentation Session 8
Tracks
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| Saturday, October 4, 2025 |
| 9:00 AM - 11:15 AM |
| Room 13 |
Overview
Chair:
Steven Okoli
Presenters
Dr Steven Okoli
Haematology consultant
Imperial College NHS Trust
Session Chair
Dr Mariangela Pellegrini
ERN-EuroBloodNet Senior Manager for Education & Patient Engagement
ERN-EuroBloodNet
Patient-driven insights in Sickle Cell Disease: results from a Global survey informing public health strategies
Mr Nithin Radhakrishnan Nair
Scientist (Non-Medical, Social Sciences)
ICMR- National Institute of Immunohaematology
Qualitative Study on Socio-Cultural Impacts on Sickle Cell Disease Newborn Screening and Public Health Solutions
Dr Sovereign Secondus
Researcher
University Of Nottingham
An Interpretative Phenomenological Analysis Study on Mothers Living with Sickle Cell Disease in the UK.
Mrs Lanre Tunji-Ajayi
Ceo/ President
Global Action Network for Sickle Cell & Other Inherited Blood Disorders
Reflections from Patients with SCD in Ontario on Hospital Care Experiences
Prof. Maria Cappellini
Professor of Internal Medicine; Chief of The Rare Diseases Centre
University of Milan, Ca’ Granda Foundation Irccs Maggiore Policlinico Hospital
Health Literacy in Thalassemia: Initial Learnings from the Thalassemia Advocacy Advisory Council Global Patient Survey
Miss. Afiya Carby
Senior Assistant Psychologist
Guys And St Thomas Nhs Trust
Supporting the Psychological Wellbeing of People with Sickle Cell When They are Admitted to Hospital.
